Podcast

PWS United

Author: PWSA | USA
Feed episode count: 100
Official site: https://pwsunited.podbean.com
RSS: https://feed.podbean.com/pwsunited/feed.xml
JSON: /v1/public/podcasts/pws-united-6997960
Markdown: /podcast/pws-united-6997960.md

Summary

Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.

Episodes

Jun 30, 2026 · not_requested

Ep99: Navigating School Transitions, Trainings, Non-Negotiables, and More with Destiny Pacha

Duration seconds: 4085
Source: https://pwsunited.podbean.com/e/ep99-navigating-school-transitions-trainings-non-negotiables-and-more-with-destiny-pacha/

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Jun 23, 2026 · not_requested

Ep98 Pulse 149: Events for Moms and Dads, Convention Registration, VYKAT Testimonial

Duration seconds: 2490
Source: https://pwsunited.podbean.com/e/ep98-pulse-149-events-for-moms-and-dads-convention-registration-vykat-testimonial/

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Jun 16, 2026 · not_requested

Ep97 Father's Day Special: Two PWS Dads, Two Events, One Powerful Mission

Duration seconds: 2456
Source: https://pwsunited.podbean.com/e/ep97-fathers-day-special-two-pws-dads-two-events-one-powerful-mission/

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Jun 9, 2026 · not_requested

Ep96 Pulse 148: Preparing for Summer, Awareness Month Gratitude, Getting Involved in Research

Duration seconds: 1742
Source: https://pwsunited.podbean.com/e/ep96-pulse-148-preparing-for-summer-awareness-month-gratitude-getting-involved-in-research/

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Jun 2, 2026 · not_requested

Ep95 Garrick Siblings: Importance of Community and Listening

Duration seconds: 2137
Source: https://pwsunited.podbean.com/e/ep95-garrick-siblings-importance-of-community-and-listening/

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May 26, 2026 · not_requested

Ep94 Advocacy is Everything: 2026 DC Fly-In Recap

Duration seconds: 2582
Source: https://pwsunited.podbean.com/e/ep-94-advocacy-is-everything-2026-dc-fly-in-recap/

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May 19, 2026 · not_requested

Ep93 Pulse 147: PWS Awareness Day, D.C. Fly-In Recap, Voices on VYKAT 5

Duration seconds: 2909
Source: https://pwsunited.podbean.com/e/ep93-pulse-147-pws-awareness-day-dc-fly-in-recap-voices-on-vykat-5/

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May 12, 2026 · not_requested

Ep92 Ask Nurse Lynn: Behavior and Psychiatric Issues

Duration seconds: 2969
Source: https://pwsunited.podbean.com/e/ep92-ask-nurse-lynn-behavior-and-psychiatric-issues/

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May 5, 2026 · not_requested

Ep91 PWS Awareness Month is Here: How to Get Involved

Duration seconds: 3126
Source: https://pwsunited.podbean.com/e/ep-91-pws-awareness-month-how-to-get-involved/

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Apr 28, 2026 · not_requested

Ep90 Staying Curious: Continuing the Equity Conversation

Duration seconds: 3650
Source: https://pwsunited.podbean.com/e/ep90-staying-curious-continuing-the-equity-conversation/

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Apr 21, 2026 · not_requested

Ep89 Pulse 145: PWS Awareness Month, DC Fly-In, Voices on VYKAT 4, Autism Blog

Duration seconds: 2965
Source: https://pwsunited.podbean.com/e/ep89-pulse-145-pws-awareness-month-dc-fly-in-voices-on-vykat-4-autism-blog/

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Apr 14, 2026 · not_requested

Ep88: What is a Rare Pharmacy? How PWS Families Receive Care Through PANTHERx

Duration seconds: 2543
Source: https://pwsunited.podbean.com/e/what-is-a-rare-pharmacy-how-pws-families-receive-care-through-pantherx/

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Apr 7, 2026 · not_requested

Ep87: Pulse 144: Conference Scholarships, Sibling Blog, VYKAT Approval Anniversary

Duration seconds: 1544
Source: https://pwsunited.podbean.com/e/ep87-pulse-144-conference-scholarships-sibling-blog-vykat-approval-anniversary/

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Mar 31, 2026 · not_requested

Ep86: Homeschooling, The Ins and Outs of Educational Choice

Duration seconds: 3485
Source: https://pwsunited.podbean.com/e/ep86-homeschooling-the-ins-and-outs-of-educational-choice/

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Mar 24, 2026 · not_requested

Ep85: Pulse 143 Hot Stove, Disordered Sleep, Voices on Vykat 3

Duration seconds: 2390
Source: https://pwsunited.podbean.com/e/ep85-pulse-143-hot-stove-disordered-sleep-voices-on-vykat-3/

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Mar 17, 2026 · not_requested

Ep84: Welcoming PWSA | USA's Equity Committee

Duration seconds: 3092
Source: https://pwsunited.podbean.com/e/ep84-welcoming-pwsa-usas-equity-committee/

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Mar 10, 2026 · not_requested

Ep83 Pulse 142: Nutrition, Rare Disease Week, Research and Study Opportunities

Duration seconds: 1761
Source: https://pwsunited.podbean.com/e/ep83-pulse-142-nutrition-rare-disease-week-research-and-study-opportunities/

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Mar 3, 2026 · not_requested

Ep82: Kady Sweeney: See the Potential, Savor Typical Moments

Duration seconds: 1992
Source: https://pwsunited.podbean.com/e/ep82-kadey-sweeney-see-the-potential-savor-typical-moments/

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Feb 24, 2026 · not_requested

Ep81 Pulse 141: Caregivers Day, Voices on Vykat, Board Member Spotlights

Duration seconds: 3612
Source: https://pwsunited.podbean.com/e/ep81-pulse-141-caregivers-day-voices-on-vykat-board-member-spotlights/

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Feb 17, 2026 · not_requested

Ep80: What's in Store for PWSA | USA in 2026?

Duration seconds: 1524
Source: https://pwsunited.podbean.com/e/ep80-whats-in-store-for-pwsa-usa-in-2026/

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Feb 10, 2026 · not_requested

Ep79 Pulse 140: Residential Providers, Plunge for PWS, PRV Win, Feeding Tubes

Duration seconds: 2140
Source: https://pwsunited.podbean.com/e/ep79-pulse-140-residential-providers-plunge-for-pws-prv-win-feeding-tubes/

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Feb 3, 2026 · not_requested

Ep78: Miriam Chernick: Educating the Community

Duration seconds: 2115
Source: https://pwsunited.podbean.com/e/ep78-miriam-chernick-educating-the-community/

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Jan 27, 2026 · not_requested

Ep77: Limits, Perspective, and Mental Wellness

Duration seconds: 3400
Source: https://pwsunited.podbean.com/e/ep77-limits-perspective-and-mental-wellness/

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Jan 21, 2026 · not_requested

Ep76 Pulse 139: Art Share Launch, Social Media Use, Voices on VYKAT Testimonial

Duration seconds: 2941
Source: https://pwsunited.podbean.com/e/ep76-pulse-139-art-share-launch-social-media-use-voices-on-vykat-testimonial/

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Jan 13, 2026 · not_requested

Ep75: Global PWS Registry 2.0

Duration seconds: 3984
Source: https://pwsunited.podbean.com/e/ep75-global-pws-registry-20/

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