# PWS United Page: https://stenobird.com/podcast/pws-united-6997960 Text version: https://stenobird.com/podcast/pws-united-6997960.md RSS feed: https://feed.podbean.com/pwsunited/feed.xml Official site: https://pwsunited.podbean.com Author: PWSA | USA Episodes: 100 ## Resource Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome. ## Machine-readable JSON: https://stenobird.com/v1/public/podcasts/pws-united-6997960 Markdown: https://stenobird.com/podcast/pws-united-6997960.md ## Episodes - [Ep99: Navigating School Transitions, Trainings, Non-Negotiables, and More with Destiny Pacha](https://stenobird.com/podcast/pws-united-6997960/ep99-navigating-school-transitions-trainings-non-negotiables-and-more-with-destiny-pacha) — 2026-06-30T10:08:00+00:00 - [Ep98 Pulse 149: Events for Moms and Dads, Convention Registration, VYKAT Testimonial](https://stenobird.com/podcast/pws-united-6997960/ep98-pulse-149-events-for-moms-and-dads-convention-registration-vykat-testimonial) — 2026-06-23T10:00:00+00:00 - [Ep97 Father's Day Special: Two PWS Dads, Two Events, One Powerful Mission](https://stenobird.com/podcast/pws-united-6997960/ep97-father-s-day-special-two-pws-dads-two-events-one-powerful-mission) — 2026-06-16T10:00:00+00:00 - [Ep96 Pulse 148: Preparing for Summer, Awareness Month Gratitude, Getting Involved in Research](https://stenobird.com/podcast/pws-united-6997960/ep96-pulse-148-preparing-for-summer-awareness-month-gratitude-getting-involved-in-research) — 2026-06-09T13:25:14+00:00 - [Ep95 Garrick Siblings: Importance of Community and Listening](https://stenobird.com/podcast/pws-united-6997960/ep95-garrick-siblings-importance-of-community-and-listening) — 2026-06-02T10:00:00+00:00 - [Ep94 Advocacy is Everything: 2026 DC Fly-In Recap](https://stenobird.com/podcast/pws-united-6997960/ep94-advocacy-is-everything-2026-dc-fly-in-recap) — 2026-05-26T10:00:00+00:00 - [Ep93 Pulse 147: PWS Awareness Day, D.C. Fly-In Recap, Voices on VYKAT 5](https://stenobird.com/podcast/pws-united-6997960/ep93-pulse-147-pws-awareness-day-d-c-fly-in-recap-voices-on-vykat-5) — 2026-05-19T10:00:00+00:00 - [Ep92 Ask Nurse Lynn: Behavior and Psychiatric Issues](https://stenobird.com/podcast/pws-united-6997960/ep92-ask-nurse-lynn-behavior-and-psychiatric-issues) — 2026-05-12T10:00:00+00:00 - [Ep91 PWS Awareness Month is Here: How to Get Involved](https://stenobird.com/podcast/pws-united-6997960/ep91-pws-awareness-month-is-here-how-to-get-involved) — 2026-05-05T10:00:00+00:00 - [Ep90 Staying Curious: Continuing the Equity Conversation](https://stenobird.com/podcast/pws-united-6997960/ep90-staying-curious-continuing-the-equity-conversation) — 2026-04-28T19:46:54+00:00 - [Ep89 Pulse 145: PWS Awareness Month, DC Fly-In, Voices on VYKAT 4, Autism Blog](https://stenobird.com/podcast/pws-united-6997960/ep89-pulse-145-pws-awareness-month-dc-fly-in-voices-on-vykat-4-autism-blog) — 2026-04-21T10:00:00+00:00 - [Ep88: What is a Rare Pharmacy? How PWS Families Receive Care Through PANTHERx](https://stenobird.com/podcast/pws-united-6997960/ep88-what-is-a-rare-pharmacy-how-pws-families-receive-care-through-pantherx) — 2026-04-14T10:00:00+00:00 - [Ep87: Pulse 144: Conference Scholarships, Sibling Blog, VYKAT Approval Anniversary](https://stenobird.com/podcast/pws-united-6997960/ep87-pulse-144-conference-scholarships-sibling-blog-vykat-approval-anniversary) — 2026-04-07T10:00:00+00:00 - [Ep86: Homeschooling, The Ins and Outs of Educational Choice](https://stenobird.com/podcast/pws-united-6997960/ep86-homeschooling-the-ins-and-outs-of-educational-choice) — 2026-03-31T10:00:00+00:00 - [Ep85: Pulse 143 Hot Stove, Disordered Sleep, Voices on Vykat 3](https://stenobird.com/podcast/pws-united-6997960/ep85-pulse-143-hot-stove-disordered-sleep-voices-on-vykat-3) — 2026-03-24T10:00:00+00:00 - [Ep84: Welcoming PWSA | USA's Equity Committee](https://stenobird.com/podcast/pws-united-6997960/ep84-welcoming-pwsa-usa-s-equity-committee) — 2026-03-17T10:00:00+00:00 - [Ep83 Pulse 142: Nutrition, Rare Disease Week, Research and Study Opportunities](https://stenobird.com/podcast/pws-united-6997960/ep83-pulse-142-nutrition-rare-disease-week-research-and-study-opportunities) — 2026-03-10T10:00:00+00:00 - [Ep82: Kady Sweeney: See the Potential, Savor Typical Moments](https://stenobird.com/podcast/pws-united-6997960/ep82-kady-sweeney-see-the-potential-savor-typical-moments) — 2026-03-03T11:00:00+00:00 - [Ep81 Pulse 141: Caregivers Day, Voices on Vykat, Board Member Spotlights](https://stenobird.com/podcast/pws-united-6997960/ep81-pulse-141-caregivers-day-voices-on-vykat-board-member-spotlights) — 2026-02-24T11:00:00+00:00 - [Ep80: What's in Store for PWSA | USA in 2026?](https://stenobird.com/podcast/pws-united-6997960/ep80-what-s-in-store-for-pwsa-usa-in-2026) — 2026-02-17T15:12:00+00:00 - [Ep79 Pulse 140: Residential Providers, Plunge for PWS, PRV Win, Feeding Tubes](https://stenobird.com/podcast/pws-united-6997960/ep79-pulse-140-residential-providers-plunge-for-pws-prv-win-feeding-tubes) — 2026-02-10T11:00:00+00:00 - [Ep78: Miriam Chernick: Educating the Community](https://stenobird.com/podcast/pws-united-6997960/ep78-miriam-chernick-educating-the-community) — 2026-02-03T11:00:00+00:00 - [Ep77: Limits, Perspective, and Mental Wellness](https://stenobird.com/podcast/pws-united-6997960/ep77-limits-perspective-and-mental-wellness) — 2026-01-27T11:00:00+00:00 - [Ep76 Pulse 139: Art Share Launch, Social Media Use, Voices on VYKAT Testimonial](https://stenobird.com/podcast/pws-united-6997960/ep76-pulse-139-art-share-launch-social-media-use-voices-on-vykat-testimonial) — 2026-01-21T11:00:00+00:00 - [Ep75: Global PWS Registry 2.0](https://stenobird.com/podcast/pws-united-6997960/ep75-global-pws-registry-2-0) — 2026-01-13T11:00:00+00:00 ## Actions Episode pages expose an explicit `request_transcript` action. 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