{"podcast":{"title":"PWS United","slug":"pws-united-6997960","podcast_index_feed_id":6997960,"rss_url":"https://feed.podbean.com/pwsunited/feed.xml","website_url":"https://pwsunited.podbean.com","image_url":"https://pbcdn1.podbean.com/imglogo/image-logo/19126646/Apple_Podcast_Logo700nu.png","author":"PWSA | USA","episode_count":100,"summary":"Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.","last_synced_at":"2026-06-30T22:19:18.194703+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960"},"episodes":[{"title":"Ep99: Navigating School Transitions, Trainings, Non-Negotiables, and More with Destiny 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episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep99-navigating-school-transitions-trainings-non-negotiables-and-more-with-destiny-pacha.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"Ep98 Pulse 149: Events for Moms and Dads, Convention Registration, VYKAT 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episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep98-pulse-149-events-for-moms-and-dads-convention-registration-vykat-testimonial.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"Ep97 Father's Day Special: Two PWS Dads, Two Events, One Powerful Mission","slug":"ep97-father-s-day-special-two-pws-dads-two-events-one-powerful-mission","published_at":"2026-06-16T10:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep97-father-s-day-special-two-pws-dads-two-events-one-powerful-mission","url":"https://pwsunited.podbean.com/e/ep97-fathers-day-special-two-pws-dads-two-events-one-powerful-mission/","duration_seconds":2456,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep97-father-s-day-special-two-pws-dads-two-events-one-powerful-mission/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep97-father-s-day-special-two-pws-dads-two-events-one-powerful-mission.md","description":"Read the agent-friendly Markdown representation of this 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episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep96-pulse-148-preparing-for-summer-awareness-month-gratitude-getting-involved-in-research.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"Ep95 Garrick Siblings: Importance of Community and Listening","slug":"ep95-garrick-siblings-importance-of-community-and-listening","published_at":"2026-06-02T10:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep95-garrick-siblings-importance-of-community-and-listening","url":"https://pwsunited.podbean.com/e/ep95-garrick-siblings-importance-of-community-and-listening/","duration_seconds":2137,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep95-garrick-siblings-importance-of-community-and-listening/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep95-garrick-siblings-importance-of-community-and-listening.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"Ep94 Advocacy is Everything: 2026 DC Fly-In Recap","slug":"ep94-advocacy-is-everything-2026-dc-fly-in-recap","published_at":"2026-05-26T10:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep94-advocacy-is-everything-2026-dc-fly-in-recap","url":"https://pwsunited.podbean.com/e/ep-94-advocacy-is-everything-2026-dc-fly-in-recap/","duration_seconds":2582,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep94-advocacy-is-everything-2026-dc-fly-in-recap/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep94-advocacy-is-everything-2026-dc-fly-in-recap.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"Ep93 Pulse 147: PWS Awareness Day, D.C. Fly-In Recap, Voices on VYKAT 5","slug":"ep93-pulse-147-pws-awareness-day-d-c-fly-in-recap-voices-on-vykat-5","published_at":"2026-05-19T10:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep93-pulse-147-pws-awareness-day-d-c-fly-in-recap-voices-on-vykat-5","url":"https://pwsunited.podbean.com/e/ep93-pulse-147-pws-awareness-day-dc-fly-in-recap-voices-on-vykat-5/","duration_seconds":2909,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep93-pulse-147-pws-awareness-day-d-c-fly-in-recap-voices-on-vykat-5/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep93-pulse-147-pws-awareness-day-d-c-fly-in-recap-voices-on-vykat-5.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"Ep92 Ask Nurse Lynn: Behavior and Psychiatric Issues","slug":"ep92-ask-nurse-lynn-behavior-and-psychiatric-issues","published_at":"2026-05-12T10:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep92-ask-nurse-lynn-behavior-and-psychiatric-issues","url":"https://pwsunited.podbean.com/e/ep92-ask-nurse-lynn-behavior-and-psychiatric-issues/","duration_seconds":2969,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep92-ask-nurse-lynn-behavior-and-psychiatric-issues/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep92-ask-nurse-lynn-behavior-and-psychiatric-issues.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"Ep91 PWS Awareness Month is Here: How to Get Involved","slug":"ep91-pws-awareness-month-is-here-how-to-get-involved","published_at":"2026-05-05T10:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep91-pws-awareness-month-is-here-how-to-get-involved","url":"https://pwsunited.podbean.com/e/ep-91-pws-awareness-month-how-to-get-involved/","duration_seconds":3126,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep91-pws-awareness-month-is-here-how-to-get-involved/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep91-pws-awareness-month-is-here-how-to-get-involved.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"Ep90 Staying Curious: Continuing the Equity Conversation","slug":"ep90-staying-curious-continuing-the-equity-conversation","published_at":"2026-04-28T19:46:54+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep90-staying-curious-continuing-the-equity-conversation","url":"https://pwsunited.podbean.com/e/ep90-staying-curious-continuing-the-equity-conversation/","duration_seconds":3650,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep90-staying-curious-continuing-the-equity-conversation/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep90-staying-curious-continuing-the-equity-conversation.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"Ep89 Pulse 145: PWS Awareness Month, DC Fly-In, Voices on VYKAT 4, Autism Blog","slug":"ep89-pulse-145-pws-awareness-month-dc-fly-in-voices-on-vykat-4-autism-blog","published_at":"2026-04-21T10:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep89-pulse-145-pws-awareness-month-dc-fly-in-voices-on-vykat-4-autism-blog","url":"https://pwsunited.podbean.com/e/ep89-pulse-145-pws-awareness-month-dc-fly-in-voices-on-vykat-4-autism-blog/","duration_seconds":2965,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep89-pulse-145-pws-awareness-month-dc-fly-in-voices-on-vykat-4-autism-blog/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep89-pulse-145-pws-awareness-month-dc-fly-in-voices-on-vykat-4-autism-blog.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"Ep88: What is a Rare Pharmacy? How PWS Families Receive Care Through PANTHERx","slug":"ep88-what-is-a-rare-pharmacy-how-pws-families-receive-care-through-pantherx","published_at":"2026-04-14T10:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep88-what-is-a-rare-pharmacy-how-pws-families-receive-care-through-pantherx","url":"https://pwsunited.podbean.com/e/what-is-a-rare-pharmacy-how-pws-families-receive-care-through-pantherx/","duration_seconds":2543,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep88-what-is-a-rare-pharmacy-how-pws-families-receive-care-through-pantherx/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep88-what-is-a-rare-pharmacy-how-pws-families-receive-care-through-pantherx.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"Ep87: Pulse 144: Conference Scholarships, Sibling Blog, VYKAT Approval Anniversary","slug":"ep87-pulse-144-conference-scholarships-sibling-blog-vykat-approval-anniversary","published_at":"2026-04-07T10:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep87-pulse-144-conference-scholarships-sibling-blog-vykat-approval-anniversary","url":"https://pwsunited.podbean.com/e/ep87-pulse-144-conference-scholarships-sibling-blog-vykat-approval-anniversary/","duration_seconds":1544,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep87-pulse-144-conference-scholarships-sibling-blog-vykat-approval-anniversary/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep87-pulse-144-conference-scholarships-sibling-blog-vykat-approval-anniversary.md","description":"Read the 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episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep86-homeschooling-the-ins-and-outs-of-educational-choice.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"Ep85: Pulse 143 Hot Stove, Disordered Sleep, Voices on Vykat 3","slug":"ep85-pulse-143-hot-stove-disordered-sleep-voices-on-vykat-3","published_at":"2026-03-24T10:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep85-pulse-143-hot-stove-disordered-sleep-voices-on-vykat-3","url":"https://pwsunited.podbean.com/e/ep85-pulse-143-hot-stove-disordered-sleep-voices-on-vykat-3/","duration_seconds":2390,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep85-pulse-143-hot-stove-disordered-sleep-voices-on-vykat-3/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep85-pulse-143-hot-stove-disordered-sleep-voices-on-vykat-3.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"Ep84: Welcoming PWSA | USA's Equity Committee","slug":"ep84-welcoming-pwsa-usa-s-equity-committee","published_at":"2026-03-17T10:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep84-welcoming-pwsa-usa-s-equity-committee","url":"https://pwsunited.podbean.com/e/ep84-welcoming-pwsa-usas-equity-committee/","duration_seconds":3092,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep84-welcoming-pwsa-usa-s-equity-committee/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep84-welcoming-pwsa-usa-s-equity-committee.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"Ep83 Pulse 142: Nutrition, Rare Disease Week, Research and Study Opportunities","slug":"ep83-pulse-142-nutrition-rare-disease-week-research-and-study-opportunities","published_at":"2026-03-10T10:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep83-pulse-142-nutrition-rare-disease-week-research-and-study-opportunities","url":"https://pwsunited.podbean.com/e/ep83-pulse-142-nutrition-rare-disease-week-research-and-study-opportunities/","duration_seconds":1761,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep83-pulse-142-nutrition-rare-disease-week-research-and-study-opportunities/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep83-pulse-142-nutrition-rare-disease-week-research-and-study-opportunities.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"Ep82: Kady Sweeney: See the Potential, Savor Typical Moments","slug":"ep82-kady-sweeney-see-the-potential-savor-typical-moments","published_at":"2026-03-03T11:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep82-kady-sweeney-see-the-potential-savor-typical-moments","url":"https://pwsunited.podbean.com/e/ep82-kadey-sweeney-see-the-potential-savor-typical-moments/","duration_seconds":1992,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep82-kady-sweeney-see-the-potential-savor-typical-moments/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep82-kady-sweeney-see-the-potential-savor-typical-moments.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"Ep81 Pulse 141: Caregivers Day, Voices on Vykat, Board Member Spotlights","slug":"ep81-pulse-141-caregivers-day-voices-on-vykat-board-member-spotlights","published_at":"2026-02-24T11:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep81-pulse-141-caregivers-day-voices-on-vykat-board-member-spotlights","url":"https://pwsunited.podbean.com/e/ep81-pulse-141-caregivers-day-voices-on-vykat-board-member-spotlights/","duration_seconds":3612,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep81-pulse-141-caregivers-day-voices-on-vykat-board-member-spotlights/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep81-pulse-141-caregivers-day-voices-on-vykat-board-member-spotlights.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"Ep80: What's in Store for PWSA | USA in 2026?","slug":"ep80-what-s-in-store-for-pwsa-usa-in-2026","published_at":"2026-02-17T15:12:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep80-what-s-in-store-for-pwsa-usa-in-2026","url":"https://pwsunited.podbean.com/e/ep80-whats-in-store-for-pwsa-usa-in-2026/","duration_seconds":1524,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep80-what-s-in-store-for-pwsa-usa-in-2026/transcription-requests","description":"Idempotently request low-priority transcript generation for this 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