# Ep94 Advocacy is Everything: 2026 DC Fly-In Recap

Page: https://stenobird.com/podcast/pws-united-6997960/ep94-advocacy-is-everything-2026-dc-fly-in-recap
Text version: https://stenobird.com/podcast/pws-united-6997960/ep94-advocacy-is-everything-2026-dc-fly-in-recap.md
Podcast: [PWS United](https://stenobird.com/podcast/pws-united-6997960)
Published: 2026-05-26T10:00:00+00:00
Episode link: https://pwsunited.podbean.com/e/ep-94-advocacy-is-everything-2026-dc-fly-in-recap/
Audio file: https://mcdn.podbean.com/mf/web/hzeswjwzniykruvj/Ep94_Advocacy_is_Everythingb652i.mp3
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JSON: https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep94-advocacy-is-everything-2026-dc-fly-in-recap
Duration seconds: 2582

## Resource

PWS advocates had an incredible experience in Washington, D.C., this past May 4-6. From policy deep dives and meetings with congressional representatives, to cocktail meetups and seeing old friends, it was a busy, but nourishing, few days. The communications team at PWSA | USA spoke with several attendees at the fly-in to hear their thoughts on what they want their representatives to take home from these meetings, moments that stood out to them, and how to describe PWS advocacy with one word. Resources: 2026-Hill-Day-Ask-Document-RDIH.pdf FDA Rare Disease Innovation Hub | FDA 2026-Hill-Day-Ask-Document-Genomic-Answers-for-CHA.pdf 2026-Hill-Day-Ask-Document-KASSA.pdf Facebook Voices That Move Policy: Recapping PWSA | USA's 2026 D.C. Fly-In - Prader-Willi Syndrome Association | USA Can't Make It to D.C.? Here's How to Advocate From Home During PWSA | USA's 2026 Fly-In - Prader-Willi Syndrome Association | USA

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## Transcript

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