{"podcast":{"title":"PWS United","slug":"pws-united-6997960","podcast_index_feed_id":6997960,"rss_url":"https://feed.podbean.com/pwsunited/feed.xml","website_url":"https://pwsunited.podbean.com","image_url":"https://pbcdn1.podbean.com/imglogo/image-logo/19126646/Apple_Podcast_Logo700nu.png","author":"PWSA | USA","episode_count":100,"summary":"Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.","last_synced_at":"2026-06-30T22:19:18.194703+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960"},"episode":{"title":"Ep99: Navigating School Transitions, Trainings, Non-Negotiables, and More with Destiny Pacha","slug":"ep99-navigating-school-transitions-trainings-non-negotiables-and-more-with-destiny-pacha","published_at":"2026-06-30T10:08:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep99-navigating-school-transitions-trainings-non-negotiables-and-more-with-destiny-pacha","show_page_url":"https://stenobird.com/podcast/pws-united-6997960","url":"https://pwsunited.podbean.com/e/ep99-navigating-school-transitions-trainings-non-negotiables-and-more-with-destiny-pacha/","audio_url":"https://mcdn.podbean.com/mf/web/jsxb9xt3vcbuudb3/Ep99_Navigating_School_Transitions_Trainings_Non-Negotioables_and_More_with_Destiny_Pacha7ylmp.mp3","summary":"This episode is loaded with important information for your school-aged loved one with PWS. Destiny Pacha, PWS education specialist and IEP consultant, gathered questions from parents and caregivers in the community about many aspects of the school experience. Topics covered include progress reports, how to re-evaluate and advocate for necessary supports, what are the non-negotiables, when to discuss extended school year (ESY) options, staff trainings, transitioning to a new classroom, school, or from summer break, addressing food security in the classroom, and more. Be sure to keep this podcast in your library as you will likely want to refer back to it again and again! Be sure to check out the many valuable resource links below. Questions for Dr. Pacha Empowered Solutions EmpowerED Solutions (@empowered_solutions_) • Instagram photos and videos Family Support Webinar: Everything You Need to Know About Extended School Year It Starts With Hello: Katie's Story About Prader-Willi Syndrome | Book Reading with Author Dr. Pacha Family Support Webinar: Creating an Individualized Health Plan Family Support: Social Stories - Prader-Willi Syndrome Association | USA Resources A-Z: Cards - Prader-Willi Syndrome Association | USA Intro Music: https://www.bensound.com/ License certificate #2242442","meta_description":"This episode is loaded with important information for your school-aged loved one with PWS. Destiny Pacha, PWS education specialist and IEP consultant, gat…","key_points":[],"chapters":[],"topics":[],"duration_seconds":4085,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep99-navigating-school-transitions-trainings-non-negotiables-and-more-with-destiny-pacha/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep99-navigating-school-transitions-trainings-non-negotiables-and-more-with-destiny-pacha.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}