Episode
Ep85: Pulse 143 Hot Stove, Disordered Sleep, Voices on Vykat 3
- Podcast
- PWS United
- Published
- Mar 24, 2026
- Duration seconds
- 2390
- Processing state
not_requested
Actions
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Summary
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Pulse Header Spotlight on PWS PWSA | USA Rare Aware Art Share: Theme #1 Gallery PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USA Share Your Story - Prader-Willi Syndrome Association | USA Resource Spotlight Swallowing in Prader-Willi Syndrome Events | Fundraisers Solidarity & Spice - Campaign You're Invited to Solidarity & Spice: A Message from Dini Rao PWANY 2026 Conference PWSA Fundraising Pages - Campaign Podcast Ep84: Welcoming PWSA | USA's Equity Committee | PWS United PWSA | USA Media Submissions - Prader-Willi Syndrome Association | USA Advocacy Prader-Willi Syndrome (PWS): A Rare Condition With Everyday Challenges Rare Diseases by Mediaplanet_USA - Issuu Prader-Willi Syndrome (PWS): A Rare Condition With Everyday Challenges - Future of Personal Health Family Support Finding a Viable Treatment for Excessive Daytime Sleepiness Through the TEMPO Trial - Prader-Willi Syndrome Association | USA Ask Nurse Lynn: Dissociation and PWS Mental Health - Prader-Willi Syndrome Association | USA Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA Research Home - Global Prader-Willi Syndrome Registry The FOCUS project PWS Clinician Information Collection Form - Prader-Willi Syndrome Association | USA Announcements PWSA | USA Board of Directors Member Spotlight: Tina Ihlenfeld - Prader-Willi Syndrome Association | USA Intro Music: https://www.bensound.com/ License certificate #2242442 Music: www.purple-planet.com Disclaimer for show notes: This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recogniz…