{"podcast":{"title":"PWS United","slug":"pws-united-6997960","podcast_index_feed_id":6997960,"rss_url":"https://feed.podbean.com/pwsunited/feed.xml","website_url":"https://pwsunited.podbean.com","image_url":"https://pbcdn1.podbean.com/imglogo/image-logo/19126646/Apple_Podcast_Logo700nu.png","author":"PWSA | USA","episode_count":100,"summary":"Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.","last_synced_at":"2026-06-30T22:19:18.194703+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960"},"episode":{"title":"Ep91 PWS Awareness Month is Here: How to Get Involved","slug":"ep91-pws-awareness-month-is-here-how-to-get-involved","published_at":"2026-05-05T10:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep91-pws-awareness-month-is-here-how-to-get-involved","show_page_url":"https://stenobird.com/podcast/pws-united-6997960","url":"https://pwsunited.podbean.com/e/ep-91-pws-awareness-month-how-to-get-involved/","audio_url":"https://mcdn.podbean.com/mf/web/jeri34nzcqp8z2nt/2026_PWS_Awareness_Month_Episode8tkd2.mp3","summary":"Another PWS Awareness Month (May 1-31) has arrived and we're excited to continue spreading awareness, information, and support for our loved ones with PWS! In this episode, PWSA | USA's Communications, Advocacy, and Development teams share ways to get involved during PWS Awareness Month - from everyday awareness actions to fundraisers, advocacy efforts and the D.C. Fly-In. Throughout May, be sure to join our social media platforms on Facebook and Instagram so you can share our daily PWS facts for this month. Get your PWS gear to rep awareness, create a fundraising page or event, file a Proclamation Day request using our Proclamation Toolkit, speak at your child's school, share resources with their group home, tell a coworker about our PWS United podcast, or take a friend out for coffee to tell them about your loved one. No action is too small! Use the links below to check out all of the awareness month resources on our resource hub webpage or read our detailed blog on the many different actions you can take this month. No matter how you spread awareness, your work to share the realities of PWS are appreciated. We're here to support you and your loved one with PWS. Happy PWS Awareness Month! Get in touch with us: communications@pwsausa.org Advocacy@pwsausa.org development@pwsausa.org info@pwsausa.org Helpful links: PWS Awareness Month Hub PWSA | USA on Facebook PWSA | USA on Instagram United in Action - Click Here to Take Action! 3rd D.C. Fly-In - Click Here to Find our Legislative Ask Documents Find Your Legislator Locator Website Advocacy & Awareness Webpage PWSA | USA is available for the PWS community 24-hours a day, 365 days a year. If and when you need support, please reach out to us. You can call us at (941) 312-0400 or email info@pwsausa.org. We are here for…","meta_description":"Another PWS Awareness Month (May 1-31) has arrived and we're excited to continue spreading awareness, information, and support for our loved ones with PWS…","key_points":[],"chapters":[],"topics":[],"duration_seconds":3126,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep91-pws-awareness-month-is-here-how-to-get-involved/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep91-pws-awareness-month-is-here-how-to-get-involved.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}