Episode
Ep93 Pulse 147: PWS Awareness Day, D.C. Fly-In Recap, Voices on VYKAT 5
- Podcast
- PWS United
- Published
- May 19, 2026
- Duration seconds
- 2909
- Processing state
not_requested
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Summary
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Pulse Header The Importance of PWS Awareness Day - PWSA | USA Blog Resource Spotlight Share Your Spotlight on PWS PWS Awareness Month Hummus & Watermelon United We Brunch Event - May 31, 2026 | Omaha, NE PWS Awareness Month Hub Events | Fundraisers View All Upcoming PWS Community Events Soleno Therapeutics PWS Community Day in New Jersey United in Action - PWS Awareness Month Campaign Podcast Ep92 Ask Nurse Lynn: Behavior and Psychiatric Issues Advocacy A full recap of PWSA | USA's 2026 D.C. Fly-In is coming soon! Colors of Hope Webinar - Advocating as a Person of Color in the Rare Disease Space (May 28 | 8 PM ET) RSVP to: [email protected] Advocacy in New Hampshire: RDAC Appointment of Melanie Zalman, Awareness Day Proclamation - PWSA | USA Blog Calling Kansas PWS Families - PWSA | USA Blog Family Support PWS Roadshow Connects Families in Bellingham for Life-Changing Outreach Event - PWSA | USA Blog More PWS Roadshow Events Ask Nurse Lynn: Recurring Urinary Tract Infections (UTI) - PWSA | USA Blog Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA Research Aardvark Therapeutics Plans to Unblind HERO and OLE Data to Inform Path Forward Following FDA Clinical Hold Free CME! The Missing Piece in the Prader-Willi Puzzle: Optimizing Transitions of Care and Patient Quality of Life PRETEND Play Intervention Study for Ages 3-7: Eligibility Form For questions, email: neurodevelopmentresearchlab@gmail.com PWS Clinician Information Collection Form PWSA | USA Announcements 2027 United in Hope National PWS Convention Scholarship Applications (Due by June 1, 2026) Intro Music: https://www.bensound.com/…