{"podcast":{"title":"PWS United","slug":"pws-united-6997960","podcast_index_feed_id":6997960,"rss_url":"https://feed.podbean.com/pwsunited/feed.xml","website_url":"https://pwsunited.podbean.com","image_url":"https://pbcdn1.podbean.com/imglogo/image-logo/19126646/Apple_Podcast_Logo700nu.png","author":"PWSA | USA","episode_count":100,"summary":"Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.","last_synced_at":"2026-06-30T22:19:18.194703+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960"},"episode":{"title":"Ep93 Pulse 147: PWS Awareness Day, D.C. Fly-In Recap, Voices on VYKAT 5","slug":"ep93-pulse-147-pws-awareness-day-d-c-fly-in-recap-voices-on-vykat-5","published_at":"2026-05-19T10:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep93-pulse-147-pws-awareness-day-d-c-fly-in-recap-voices-on-vykat-5","show_page_url":"https://stenobird.com/podcast/pws-united-6997960","url":"https://pwsunited.podbean.com/e/ep93-pulse-147-pws-awareness-day-dc-fly-in-recap-voices-on-vykat-5/","audio_url":"https://mcdn.podbean.com/mf/web/rr4qn76wx8b2kare/Ep93_Pulse_147666iz.mp3","summary":"The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Pulse Header The Importance of PWS Awareness Day - PWSA | USA Blog Resource Spotlight Share Your Spotlight on PWS PWS Awareness Month Hummus & Watermelon United We Brunch Event - May 31, 2026 | Omaha, NE PWS Awareness Month Hub Events | Fundraisers View All Upcoming PWS Community Events Soleno Therapeutics PWS Community Day in New Jersey United in Action - PWS Awareness Month Campaign Podcast Ep92 Ask Nurse Lynn: Behavior and Psychiatric Issues Advocacy A full recap of PWSA | USA's 2026 D.C. Fly-In is coming soon! Colors of Hope Webinar - Advocating as a Person of Color in the Rare Disease Space (May 28 | 8 PM ET) RSVP to: bipocpws@gmail.com Advocacy in New Hampshire: RDAC Appointment of Melanie Zalman, Awareness Day Proclamation - PWSA | USA Blog Calling Kansas PWS Families - PWSA | USA Blog Family Support PWS Roadshow Connects Families in Bellingham for Life-Changing Outreach Event - PWSA | USA Blog More PWS Roadshow Events Ask Nurse Lynn: Recurring Urinary Tract Infections (UTI) - PWSA | USA Blog Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA Research Aardvark Therapeutics Plans to Unblind HERO and OLE Data to Inform Path Forward Following FDA Clinical Hold Free CME! The Missing Piece in the Prader-Willi Puzzle: Optimizing Transitions of Care and Patient Quality of Life PRETEND Play Intervention Study for Ages 3-7: Eligibility Form For questions, email: neurodevelopmen​tresearchlab@gm​ail.com PWS Clinician Information Collection Form PWSA | USA Announcements 2027 United in Hope National PWS Convention Scholarship Applications (Due by June 1, 2026) Intro Music: https://www.bensound.com/…","meta_description":"The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Pulse Header The Importance of P…","key_points":[],"chapters":[],"topics":[],"duration_seconds":2909,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep93-pulse-147-pws-awareness-day-d-c-fly-in-recap-voices-on-vykat-5/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep93-pulse-147-pws-awareness-day-d-c-fly-in-recap-voices-on-vykat-5.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}