{"podcast":{"title":"PWS United","slug":"pws-united-6997960","podcast_index_feed_id":6997960,"rss_url":"https://feed.podbean.com/pwsunited/feed.xml","website_url":"https://pwsunited.podbean.com","image_url":"https://pbcdn1.podbean.com/imglogo/image-logo/19126646/Apple_Podcast_Logo700nu.png","author":"PWSA | USA","episode_count":100,"summary":"Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.","last_synced_at":"2026-06-30T22:19:18.194703+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960"},"episode":{"title":"Ep78: Miriam Chernick: Educating the Community","slug":"ep78-miriam-chernick-educating-the-community","published_at":"2026-02-03T11:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep78-miriam-chernick-educating-the-community","show_page_url":"https://stenobird.com/podcast/pws-united-6997960","url":"https://pwsunited.podbean.com/e/ep78-miriam-chernick-educating-the-community/","audio_url":"https://mcdn.podbean.com/mf/web/zp2vbvt3qgcjgeit/Ep78_Miriam_Chernickb6mty.mp3","summary":"We’re excited to share our latest Sibling Advocacy episode on PWS United. In this ongoing series, we talk with siblings about how they show up for their loved ones with PWS, whether at the kitchen table, at school, among friends, in government spaces, or anywhere their sibling may need support. This episode is hosted by Elaine Towle, PWSA | USA's Advocacy Specialist and mom to James, living with PWS. Elaine spoke with sibling and author, Miriam Chernick. Miriam's brother, Daniel, is 69 and living with PWS. She spoke with Elaine about her relationship with her brother and how that has changed over the years, deciding when to speak up for him and when to let him speak up for himself, her concerns for his aging, and how she sees sibling advocacy as educating the community. She also talks briefly about her book, The Zuzu Secret. The Zuzu Secret \"told in alternating points of view, is about Josie, a 12-year-old aspiring veterinarian, and Abe, her 15-year-old baseball-loving brother born with a rare disease called Prader-Willi syndrome, as they learn the risks of keeping secrets and the value of family while staying true to their dreams.\" Use the link to learn more and purchase your copy of The Zuzu Secret: The Zuzu Secret Novel for Elementary and Middle Grade - Beardies, Prader-Willis Syndrome, Baseball — Miriam Chernick - Author & Educator","meta_description":"We’re excited to share our latest Sibling Advocacy episode on PWS United. In this ongoing series, we talk with siblings about how they show up for their l…","key_points":[],"chapters":[],"topics":[],"duration_seconds":2115,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep78-miriam-chernick-educating-the-community/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep78-miriam-chernick-educating-the-community.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}