{"podcast":{"title":"PWS United","slug":"pws-united-6997960","podcast_index_feed_id":6997960,"rss_url":"https://feed.podbean.com/pwsunited/feed.xml","website_url":"https://pwsunited.podbean.com","image_url":"https://pbcdn1.podbean.com/imglogo/image-logo/19126646/Apple_Podcast_Logo700nu.png","author":"PWSA | USA","episode_count":100,"summary":"Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.","last_synced_at":"2026-06-30T22:19:18.194703+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960"},"episode":{"title":"Ep84: Welcoming PWSA | USA's Equity Committee","slug":"ep84-welcoming-pwsa-usa-s-equity-committee","published_at":"2026-03-17T10:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep84-welcoming-pwsa-usa-s-equity-committee","show_page_url":"https://stenobird.com/podcast/pws-united-6997960","url":"https://pwsunited.podbean.com/e/ep84-welcoming-pwsa-usas-equity-committee/","audio_url":"https://mcdn.podbean.com/mf/web/39xcv7gcd8nx7ucp/Ep84_Equity_Committee6zn5c.mp3","summary":"In this episode, we introduce PWSA | USA’s newly formed Equity Committee and some of the members. We discuss the importance of an equity committee, who’s been missing from the conversations, data, research, and services, and how involving families from marginalized communities is essential to our organization and our humanity. We talk about health equity, the different dimensions of diversity, how and why to have these difficult conversations, and how families can help support equity at home. Joining Anne Fricke, PWSA | USA's communications coordinator, for this conversation are Tracy Chin, PWS parent and RN working in community-based transitional care; Ashish Rishi, founder and CEO of Unwritten Health; Dini Rao, PWS parent, community organizer and PWSA board member; and PWSA's CEO, Stacy Ward. Links: Solidarity and Spice: https://give.pwsausa.org/event/solidarity-and-spice/e758863 Donate to PWSA | USA’s Equity Committee. Follow the link to donate and clarify in your donation that you would like the money to go to the Equity Committee: Donate - Prader-Willi Syndrome Association | USA Implicit Bias Test: Take a Test So You Want to Talk About Race: So You Want to Talk About Race used book by Ijeoma Oluo: 9781580058827 Tracy: In terms of equity books, I highly recommend this one: \"Being Heumann: An Unrepentant Memoir of a Disability Rights Activist\": Being Heumann | Personal Story & Fighting Education | Judithheumann This isn't a book, but the documentary \"Crip Camp\" is really good as well!: Crip Camp | A Disability Revolution Ashish: One book I can definitely recommend is: Reigniting the Human Connection: A Pathway to Diversity, Equity, and Inclusion in Healthcare - its a really good book about how a clinic in US made themselves more inclusive.: Reigniting the Human…","meta_description":"In this episode, we introduce PWSA | USA’s newly formed Equity Committee and some of the members. We discuss the importance of an equity committee, who’s…","key_points":[],"chapters":[],"topics":[],"duration_seconds":3092,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep84-welcoming-pwsa-usa-s-equity-committee/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep84-welcoming-pwsa-usa-s-equity-committee.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}