# Ep83 Pulse 142: Nutrition, Rare Disease Week, Research and Study Opportunities

Page: https://stenobird.com/podcast/pws-united-6997960/ep83-pulse-142-nutrition-rare-disease-week-research-and-study-opportunities
Text version: https://stenobird.com/podcast/pws-united-6997960/ep83-pulse-142-nutrition-rare-disease-week-research-and-study-opportunities.md
Podcast: [PWS United](https://stenobird.com/podcast/pws-united-6997960)
Published: 2026-03-10T10:00:00+00:00
Episode link: https://pwsunited.podbean.com/e/ep83-pulse-142-nutrition-rare-disease-week-research-and-study-opportunities/
Audio file: https://mcdn.podbean.com/mf/web/3zs7cfh6qegqgqjt/Ep83_Pulse_1428jrvv.mp3
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JSON: https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep83-pulse-142-nutrition-rare-disease-week-research-and-study-opportunities
Duration seconds: 1761

## Resource

The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Pulse Header Nutrition Discourse in the PWS Community - Prader-Willi Syndrome Association | USA Nutrition in the PWS Family - Prader-Willi Syndrome Association | USA NUTRITIONAL-PHASES.pdf Resources: Diet and Nutrition - Prader-Willi Syndrome Association | USA Spotlight on PWS Share Your Story - Prader-Willi Syndrome Association | USA Resource Spotlight Swallowing in Prader-Willi Syndrome Share Your Rare Story - Prader-Willi Syndrome Association | USA Events | Fundraisers Prader Silly: A Night of Rare Laughs - Campaign Events from March 21, 2020 – September 12, 2020 – Prader-Willi Syndrome Association | USA PWSA Fundraising Pages - Campaign Podcast Ep82: Kady Sweeney: See the Potential, Savor Typical Moments | PWS United Advocacy Rare Disease Advocacy in the PWS Community - Prader-Willi Syndrome Association | USA Reflections from Rare Disease Week on Capitol Hill 2026 - Prader-Willi Syndrome Association | USA PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USA Family Support We're Here: Then, Now, Always! Developmental Disabilities Awareness Month - Prader-Willi Syndrome Association | USA Play-based Assessment for Preschoolers: If you have questions, please email neurodevelopmentresearchlab@gmail.com or call 216-368-0112. Visit the website at https://caslabs.case.edu/dimitropouloslab/. Fill out the eligibility form at PRETEND Program for Preschoolers Eligibility Form Ask Nurse Lynn: Nutrition Guidelines and a Group Home - Prader-Willi Syndrome Association | USA Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA Research Aardvark Therapeutics Announces Voluntary Pause of Phase 3 HER…

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## Transcript

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