{"podcast":{"title":"PWS United","slug":"pws-united-6997960","podcast_index_feed_id":6997960,"rss_url":"https://feed.podbean.com/pwsunited/feed.xml","website_url":"https://pwsunited.podbean.com","image_url":"https://pbcdn1.podbean.com/imglogo/image-logo/19126646/Apple_Podcast_Logo700nu.png","author":"PWSA | USA","episode_count":100,"summary":"Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.","last_synced_at":"2026-06-30T22:19:18.194703+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960"},"episode":{"title":"Ep82: Kady Sweeney: See the Potential, Savor Typical Moments","slug":"ep82-kady-sweeney-see-the-potential-savor-typical-moments","published_at":"2026-03-03T11:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep82-kady-sweeney-see-the-potential-savor-typical-moments","show_page_url":"https://stenobird.com/podcast/pws-united-6997960","url":"https://pwsunited.podbean.com/e/ep82-kadey-sweeney-see-the-potential-savor-typical-moments/","audio_url":"https://mcdn.podbean.com/mf/web/46w2ti6ub3ee859u/Ep82_Kady_Sweeney_Sibling8lq1c.mp3","summary":"We’re excited to share our latest Sibling Advocacy episode on PWS United. In this ongoing series, we talk with siblings about how they show up for their loved ones with PWS, whether at the kitchen table, at school, among friends, in government spaces, or anywhere their sibling may need support. This episode is hosted by Dorothea Lantz, PWSA | USA's Director of Community Engagement and mom to Hunter, living with PWS. She spoke with Kady Sweeney, sister to Klara (15, living with PWS). Kady shares the memory of when she realized PWS was not a typical experience. Finding the moments to laugh and the importance of the typical moments with a loved one with PWS. Kady's mission is for people outside of the rare disease community to recognize the potential of individuals with PWS. She also shares her vision of the future for her sister and others with PWS and how she plans to be a part of it. Learn more about Prader-Willi syndrome and PWSA | USA at www.pwsausa.org Intro Music: https://www.bensound.com/ License certificate #2242442","meta_description":"We’re excited to share our latest Sibling Advocacy episode on PWS United. In this ongoing series, we talk with siblings about how they show up for their l…","key_points":[],"chapters":[],"topics":[],"duration_seconds":1992,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep82-kady-sweeney-see-the-potential-savor-typical-moments/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep82-kady-sweeney-see-the-potential-savor-typical-moments.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}