{"podcast":{"title":"PWS United","slug":"pws-united-6997960","podcast_index_feed_id":6997960,"rss_url":"https://feed.podbean.com/pwsunited/feed.xml","website_url":"https://pwsunited.podbean.com","image_url":"https://pbcdn1.podbean.com/imglogo/image-logo/19126646/Apple_Podcast_Logo700nu.png","author":"PWSA | USA","episode_count":100,"summary":"Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.","last_synced_at":"2026-06-30T22:19:18.194703+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960"},"episode":{"title":"Ep98 Pulse 149: Events for Moms and Dads, Convention Registration, VYKAT Testimonial","slug":"ep98-pulse-149-events-for-moms-and-dads-convention-registration-vykat-testimonial","published_at":"2026-06-23T10:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep98-pulse-149-events-for-moms-and-dads-convention-registration-vykat-testimonial","show_page_url":"https://stenobird.com/podcast/pws-united-6997960","url":"https://pwsunited.podbean.com/e/ep98-pulse-149-events-for-moms-and-dads-convention-registration-vykat-testimonial/","audio_url":"https://mcdn.podbean.com/mf/web/y67v9cn3hser3nz3/Ep98_Pulse_14973pmd.mp3","summary":"The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Pulse Header 2027 PWSA | USA United in Hope National Convention - Prader-Willi Syndrome Association | USA Caribe Royale Resort | Resort in Orlando Florida | Official Site Spotlight on PWS Share Your Story - Prader-Willi Syndrome Association | USA Resource Spotlight How To Travel with Refrigerated Medication - PWSA USA Events | Fundraisers Mom’s Hike: 2026 Event Series pwshikingmom@gmail.com Home - DADventure Retreat PWSA Events Podcast Ep97 Father's Day Special: Two PWS Dads, Two Events, One Powerful Mission | PWS United Advocacy Advocacy & Awareness - Prader-Willi Syndrome Association | USA Family Support Appreciation for Fathers and How They Show Up for PWS - Prader-Willi Syndrome Association | USA Ask Nurse Lynn: Anesthesia and Steroids - Prader-Willi Syndrome Association | USA Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA Research TEMPO PWS Clinical Study For Prader-Willi Syndrome - Enroll Today PWS Clinician Information Collection Form - Prader-Willi Syndrome Association | USA Announcements PWSA | USA Board of Directors Member Spotlight: John Lens - Prader-Willi Syndrome Association | USA Intro Music: https://www.bensound.com/ License certificate #2242442 Music: www.purple-planet.com Disclaimer for show notes: This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information…","meta_description":"The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Pulse Header 2027 PWSA | USA Uni…","key_points":[],"chapters":[],"topics":[],"duration_seconds":2490,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep98-pulse-149-events-for-moms-and-dads-convention-registration-vykat-testimonial/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep98-pulse-149-events-for-moms-and-dads-convention-registration-vykat-testimonial.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}