{"podcast":{"title":"PWS United","slug":"pws-united-6997960","podcast_index_feed_id":6997960,"rss_url":"https://feed.podbean.com/pwsunited/feed.xml","website_url":"https://pwsunited.podbean.com","image_url":"https://pbcdn1.podbean.com/imglogo/image-logo/19126646/Apple_Podcast_Logo700nu.png","author":"PWSA | USA","episode_count":100,"summary":"Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.","last_synced_at":"2026-06-30T22:19:18.194703+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960"},"episode":{"title":"Ep83 Pulse 142: Nutrition, Rare Disease Week, Research and Study Opportunities","slug":"ep83-pulse-142-nutrition-rare-disease-week-research-and-study-opportunities","published_at":"2026-03-10T10:00:00+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep83-pulse-142-nutrition-rare-disease-week-research-and-study-opportunities","show_page_url":"https://stenobird.com/podcast/pws-united-6997960","url":"https://pwsunited.podbean.com/e/ep83-pulse-142-nutrition-rare-disease-week-research-and-study-opportunities/","audio_url":"https://mcdn.podbean.com/mf/web/3zs7cfh6qegqgqjt/Ep83_Pulse_1428jrvv.mp3","summary":"The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Pulse Header Nutrition Discourse in the PWS Community - Prader-Willi Syndrome Association | USA Nutrition in the PWS Family - Prader-Willi Syndrome Association | USA NUTRITIONAL-PHASES.pdf Resources: Diet and Nutrition - Prader-Willi Syndrome Association | USA Spotlight on PWS Share Your Story - Prader-Willi Syndrome Association | USA Resource Spotlight Swallowing in Prader-Willi Syndrome Share Your Rare Story - Prader-Willi Syndrome Association | USA Events | Fundraisers Prader Silly: A Night of Rare Laughs - Campaign Events from March 21, 2020 – September 12, 2020 – Prader-Willi Syndrome Association | USA PWSA Fundraising Pages - Campaign Podcast Ep82: Kady Sweeney: See the Potential, Savor Typical Moments | PWS United Advocacy Rare Disease Advocacy in the PWS Community - Prader-Willi Syndrome Association | USA Reflections from Rare Disease Week on Capitol Hill 2026 - Prader-Willi Syndrome Association | USA PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USA Family Support We're Here: Then, Now, Always! Developmental Disabilities Awareness Month - Prader-Willi Syndrome Association | USA Play-based Assessment for Preschoolers: If you have questions, please email neurodevelopmentresearchlab@gmail.com or call 216-368-0112. Visit the website at https://caslabs.case.edu/dimitropouloslab/. Fill out the eligibility form at PRETEND Program for Preschoolers Eligibility Form Ask Nurse Lynn: Nutrition Guidelines and a Group Home - Prader-Willi Syndrome Association | USA Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA Research Aardvark Therapeutics Announces Voluntary Pause of Phase 3 HER…","meta_description":"The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Pulse Header Nutrition Discourse…","key_points":[],"chapters":[],"topics":[],"duration_seconds":1761,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep83-pulse-142-nutrition-rare-disease-week-research-and-study-opportunities/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep83-pulse-142-nutrition-rare-disease-week-research-and-study-opportunities.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}