{"podcast":{"title":"PWS United","slug":"pws-united-6997960","podcast_index_feed_id":6997960,"rss_url":"https://feed.podbean.com/pwsunited/feed.xml","website_url":"https://pwsunited.podbean.com","image_url":"https://pbcdn1.podbean.com/imglogo/image-logo/19126646/Apple_Podcast_Logo700nu.png","author":"PWSA | USA","episode_count":100,"summary":"Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.","last_synced_at":"2026-06-30T22:19:18.194703+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960"},"episode":{"title":"Ep96 Pulse 148: Preparing for Summer, Awareness Month Gratitude, Getting Involved in Research","slug":"ep96-pulse-148-preparing-for-summer-awareness-month-gratitude-getting-involved-in-research","published_at":"2026-06-09T13:25:14+00:00","page_url":"https://stenobird.com/podcast/pws-united-6997960/ep96-pulse-148-preparing-for-summer-awareness-month-gratitude-getting-involved-in-research","show_page_url":"https://stenobird.com/podcast/pws-united-6997960","url":"https://pwsunited.podbean.com/e/ep96-pulse-148-preparing-for-summer-awareness-month-gratitude-getting-involved-in-research/","audio_url":"https://mcdn.podbean.com/mf/web/d45yv7vbpa3rmzar/Ep96_Pulse_1487emoc.mp3","summary":"The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Pulse Header Enjoy Summer with this List of Fun Activities! - Prader-Willi Syndrome Association | USA Navigating Summer Celebrations - Prader-Willi Syndrome Association | USA Staying Safe in the Heat - Prader-Willi Syndrome Association | USA Spotlight on PWS Share Your Story - Prader-Willi Syndrome Association | USA Resource Spotlight TREND Connect Events | Fundraisers Dancing Through the Decades - Campaign Donate to Hummus & Watermelon: United We Brunch for PWS PWSA Events Podcast Ep95 Garrick Siblings: Importance of Community and Listening | PWS United Advocacy Local Moms Show Support for Prader-Willi Syndrome Awareness Day Finding the Funny Prader Silly: A Night of Rare Laughs - Campaign D.C. Fly-In 2026 - Prader-Willi Syndrome Association | USA Family Support Awareness Month Success: Thank you, PWS Community! - Prader-Willi Syndrome Association | USA Medical Stories - Prader-Willi Syndrome (PWS): Ayoni's Story Ask Nurse Lynn: NG Tube or G Tube - Prader-Willi Syndrome Association | USA Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA Research Home - Global Prader-Willi Syndrome Registry The Missing Piece in the Prader-Willi Puzzle: Optimizing Transitions of Care and Patient Quality of Life PRETEND Program for Preschoolers Eligibility Form PWS Clinician Information Collection Form - Prader-Willi Syndrome Association | USA Announcements 2027 PWSA | USA United in Hope National Convention - Prader-Willi Syndrome Association | USA Intro Music: https://www.bensound.com/ License certificate #2242442 Music: www.purple-planet.com Disclaimer for show notes: This episode is sponsored by Soleno Ther…","meta_description":"The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Pulse Header Enjoy Summer with t…","key_points":[],"chapters":[],"topics":[],"duration_seconds":1742,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pws-united-6997960/episodes/ep96-pulse-148-preparing-for-summer-awareness-month-gratitude-getting-involved-in-research/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pws-united-6997960/ep96-pulse-148-preparing-for-summer-awareness-month-gratitude-getting-involved-in-research.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}