Podcast

The Rare Life

Author: Madeline Cheney
Feed episode count: 305
Official site: https://therarelife.org
RSS: https://anchor.fm/s/22c0499c/podcast/rss
JSON: /v1/public/podcasts/the-rare-life-1239619
Markdown: /podcast/the-rare-life-1239619.md

Summary

This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.

Episodes

Jul 9, 2026 · not_requested

Clinical Trials | Should I Enroll my Disabled Child in One? (Summer Mini #5)

Duration seconds: 1469
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/Clinical-Trials--Should-I-Enroll-my-Disabled-Child-in-One--Summer-Mini-5-e3ls3ja

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Jul 2, 2026 · not_requested

How Time in Nature Impacts Disability Parents (Summer Mini #4)

Duration seconds: 1561
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/How-Time-in-Nature-Impacts-Disability-Parents-Summer-Mini-4-e3lirga

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Jun 25, 2026 · not_requested

Traveling with Disabled Kids Tips and Tricks (Summer Mini #3)

Duration seconds: 5052
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/Traveling-with-Disabled-Kids-Tips-and-Tricks-Summer-Mini-3-e3l95r3

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Jun 18, 2026 · not_requested

The Forgotten Fathers | To The Dads Who Hold It All Together w/ Lizzie (Summer Mini #2)

Duration seconds: 1132
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/The-Forgotten-Fathers--To-The-Dads-Who-Hold-It-All-Together-w-Lizzie-Summer-Mini-2-e3kvhus

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Jun 11, 2026 · not_requested

Summertime Feels, Disability Ed. (Summer Mini #1)

Duration seconds: 1293
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/Summertime-Feels--Disability-Ed--Summer-Mini-1-e3klfqa

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May 28, 2026 · not_requested

228: Season 13 Finale | Biggest Impacts, Hardest Listens, + A Special Guest

Duration seconds: 1994
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/228-Season-13-Finale--Biggest-Impacts--Hardest-Listens---A-Special-Guest-e3k14ir

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May 21, 2026 · not_requested

227: Abuse and Neglect Safeguards | Who We Can Trust + How to Protect Our Disabled Children

Duration seconds: 2056
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/227-Abuse-and-Neglect-Safeguards--Who-We-Can-Trust--How-to-Protect-Our-Disabled-Children-e3jn0c4

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May 14, 2026 · not_requested

226: Should I Be Raising Awareness About My Child’s Diagnosis?

Duration seconds: 2892
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/226-Should-I-Be-Raising-Awareness-About-My-Childs-Diagnosis-e3jc9l1

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May 7, 2026 · not_requested

225: Schooling Options for Disabled Kids | Advocacy, Access + Emotional Toll of Navigating Tough Choices w/ Rachel Redmond

Duration seconds: 3161
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/225-Schooling-Options-for-Disabled-Kids--Advocacy--Access--Emotional-Toll-of-Navigating-Tough-Choices-w-Rachel-Redmond-e3j1n0g

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Apr 30, 2026 · not_requested

224: Emergencies & ER Visits | Making the Call, Coping with “What Ifs” + Survival Tips

Duration seconds: 3953
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/224-Emergencies--ER-Visits--Making-the-Call--Coping-with-What-Ifs--Survival-Tips-e3in1ms

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Apr 23, 2026 · not_requested

223: Noelle’s Story | A Terminal Diagnosis, Making Decisions Without a Roadmap, + Longterm Advocacy

Duration seconds: 2587
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/223-Noelles-Story--A-Terminal-Diagnosis--Making-Decisions-Without-a-Roadmap---Longterm-Advocacy-e3ibtic

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Apr 16, 2026 · not_requested

222: Intellectual Disabilities | Complicated Grief, Stigma, and Shifting Perspectives w/ Amanda Griffith-Atkins, Madeline and Alyssa

Duration seconds: 3654
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/222-Intellectual-Disabilities--Complicated-Grief--Stigma--and-Shifting-Perspectives-w-Amanda-Griffith-Atkins--Madeline-and-Alyssa-e3i0ot5

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Apr 9, 2026 · not_requested

221: Equipment for Our Medically Complex Children | Grief, Gratitude, and Everything In Between

Duration seconds: 3144
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/221-Equipment-for-Our-Medically-Complex-Children--Grief--Gratitude--and-Everything-In-Between-e3hlnk9

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Apr 2, 2026 · not_requested

220: Robin’s Story | Preparing for the Worst, Staying Present, + Embracing a Different Type of Fatherhood

Duration seconds: 2408
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/220-Robins-Story--Preparing-for-the-Worst--Staying-Present---Embracing-a-Different-Type-of-Fatherhood-e3hbdo0

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Mar 26, 2026 · not_requested

219: How Do I Handle Questions from Strangers About My Disabled Child? w/ Disabled Author James Catchpole (UPDATED)

Duration seconds: 3303
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/219-How-Do-I-Handle-Questions-from-Strangers-About-My-Disabled-Child--w-Disabled-Author-James-Catchpole-UPDATED-e3h0lca

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Mar 19, 2026 · not_requested

218: Moms vs. Dads in the Medical System | Dismissal, Assumptions + the Cost of Not Being Trusted w/ Kyrie Herman

Duration seconds: 3271
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/218-Moms-vs--Dads-in-the-Medical-System--Dismissal--Assumptions--the-Cost-of-Not-Being-Trusted-w-Kyrie-Herman-e3gmjus

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Mar 12, 2026 · not_requested

217: The NICU Experience | The Shock, Fear, and Emotional Rollercoaster of Navigating the Unknown w/ Madeline

Duration seconds: 5540
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/217-The-NICU-Experience--The-Shock--Fear--and-Emotional-Rollercoaster-of-Navigating-the-Unknown-w-Madeline-e3gbmra

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Mar 5, 2026 · not_requested

216: Cindy's Story | Survival Mode, Unexpected Grief + Navigating Inclusion and Accessibility

Duration seconds: 3221
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/216-Cindys-Story--Survival-Mode--Unexpected-Grief--Navigating-Inclusion-and-Accessibility-e3g07d5

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Feb 26, 2026 · not_requested

215: Behaviors | Isolation, Guilt + Why It’s Not About “Control” w/ Annie and Katie

Duration seconds: 3094
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/215-Behaviors--Isolation--Guilt--Why-Its-Not-About-Control-w-Annie-and-Katie-e3flnaj

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Feb 19, 2026 · not_requested

214: Relocation for Better Support | All the Factors to Consider + Complicated Decision-Making w/ Madeline

Duration seconds: 4774
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/214-Relocation-for-Better-Support--All-the-Factors-to-Consider--Complicated-Decision-Making-w-Madeline-e3faqgc

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Feb 12, 2026 · not_requested

213: Deonna’s Story | A Childhood Injury & Stroke + Healing After Sudden Life Changes

Duration seconds: 3972
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/213-Deonnas-Story--A-Childhood-Injury--Stroke--Healing-After-Sudden-Life-Changes-e3f0tc7

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Feb 5, 2026 · not_requested

212: Surgeries | The Feelings We Have Before, During, and After + How Families Cope w/ Madeline

Duration seconds: 4361
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/212-Surgeries--The-Feelings-We-Have-Before--During--and-After--How-Families-Cope-w-Madeline-e3embu7

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Jan 29, 2026 · not_requested

211: Trachs & Vents | Fear, Hypervigilance, & Finding a New Normal w/ Ashley Caywood

Duration seconds: 4305
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/211-Trachs--Vents--Fear--Hypervigilance---Finding-a-New-Normal-w-Ashley-Caywood-e3ec38n

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Jan 22, 2026 · not_requested

210: Receiving Judgement for Disability Parent Decisions w/ Madeline

Duration seconds: 4160
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/210-Receiving-Judgement-for-Disability-Parent-Decisions-w-Madeline-e3e1iv3

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Jan 15, 2026 · not_requested

209: Kenya’s Story | When Lightning Strikes Twice + Trusting Your Instincts

Duration seconds: 2799
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/209-Kenyas-Story--When-Lightning-Strikes-Twice--Trusting-Your-Instincts-e3dlqbu

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Jan 9, 2026 · not_requested

208: Season 13 Kickoff | A New Theme + Sneak Peeks

Duration seconds: 977
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/208-Season-13-Kickoff--A-New-Theme--Sneak-Peeks-e3ddq7u

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Dec 11, 2025 · not_requested

207: Season 12 Finale | Switching Hosts, Behind the Scenes + A Unanimous Favorite

Duration seconds: 2087
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/207-Season-12-Finale--Switching-Hosts--Behind-the-Scenes--A-Unanimous-Favorite-e3c7go7

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Dec 4, 2025 · not_requested

206: When Family Rejects Your Disabled Child + the Hurt it Causes w/ Madeline

Duration seconds: 4106
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/206-When-Family-Rejects-Your-Disabled-Child--the-Hurt-it-Causes-w-Madeline-e3bsmkb

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Nov 27, 2025 · not_requested

TRL + The Power of Feeling Less Alone

Duration seconds: 1494
Source: https://podcasters.spotify.com/pod/show/the-rare-life/episodes/TRL--The-Power-of-Feeling-Less-Alone-e3bi7kh

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