{"podcast":{"title":"The Rare Life","slug":"the-rare-life-1239619","podcast_index_feed_id":1239619,"rss_url":"https://anchor.fm/s/22c0499c/podcast/rss","website_url":"https://therarelife.org","image_url":"https://d3t3ozftmdmh3i.cloudfront.net/staging/podcast_uploaded_nologo/5730271/7551fc611b293c10.jpeg","author":"Madeline Cheney","episode_count":305,"summary":"This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.","last_synced_at":"2026-07-10T02:17:02.683032+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619"},"episodes":[{"title":"Clinical Trials | Should I Enroll my Disabled Child in One? 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(Summer Mini #1)","slug":"summertime-feels-disability-ed-summer-mini-1","published_at":"2026-06-11T14:26:58+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619/summertime-feels-disability-ed-summer-mini-1","url":"https://podcasters.spotify.com/pod/show/the-rare-life/episodes/Summertime-Feels--Disability-Ed--Summer-Mini-1-e3klfqa","duration_seconds":1293,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/the-rare-life-1239619/episodes/summertime-feels-disability-ed-summer-mini-1/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/the-rare-life-1239619/summertime-feels-disability-ed-summer-mini-1.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"228: Season 13 Finale | Biggest Impacts, Hardest Listens, + A Special Guest","slug":"228-season-13-finale-biggest-impacts-hardest-listens-a-special-guest","published_at":"2026-05-28T14:31:33+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619/228-season-13-finale-biggest-impacts-hardest-listens-a-special-guest","url":"https://podcasters.spotify.com/pod/show/the-rare-life/episodes/228-Season-13-Finale--Biggest-Impacts--Hardest-Listens---A-Special-Guest-e3k14ir","duration_seconds":1994,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/the-rare-life-1239619/episodes/228-season-13-finale-biggest-impacts-hardest-listens-a-special-guest/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/the-rare-life-1239619/228-season-13-finale-biggest-impacts-hardest-listens-a-special-guest.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"227: Abuse and Neglect Safeguards | Who We Can Trust + How to Protect Our Disabled Children","slug":"227-abuse-and-neglect-safeguards-who-we-can-trust-how-to-protect-our-disabled-children","published_at":"2026-05-21T15:12:44+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619/227-abuse-and-neglect-safeguards-who-we-can-trust-how-to-protect-our-disabled-children","url":"https://podcasters.spotify.com/pod/show/the-rare-life/episodes/227-Abuse-and-Neglect-Safeguards--Who-We-Can-Trust--How-to-Protect-Our-Disabled-Children-e3jn0c4","duration_seconds":2056,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/the-rare-life-1239619/episodes/227-abuse-and-neglect-safeguards-who-we-can-trust-how-to-protect-our-disabled-children/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/the-rare-life-1239619/227-abuse-and-neglect-safeguards-who-we-can-trust-how-to-protect-our-disabled-children.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"226: Should I Be Raising Awareness About My Child’s Diagnosis?","slug":"226-should-i-be-raising-awareness-about-my-child-s-diagnosis","published_at":"2026-05-14T15:11:24+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619/226-should-i-be-raising-awareness-about-my-child-s-diagnosis","url":"https://podcasters.spotify.com/pod/show/the-rare-life/episodes/226-Should-I-Be-Raising-Awareness-About-My-Childs-Diagnosis-e3jc9l1","duration_seconds":2892,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/the-rare-life-1239619/episodes/226-should-i-be-raising-awareness-about-my-child-s-diagnosis/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/the-rare-life-1239619/226-should-i-be-raising-awareness-about-my-child-s-diagnosis.md","description":"Read the agent-friendly Markdown representation of this 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episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/the-rare-life-1239619/225-schooling-options-for-disabled-kids-advocacy-access-emotional-toll-of-navigating-tough-choices-w-rachel-redmond.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"224: Emergencies & ER Visits | Making the Call, Coping with “What Ifs” + Survival Tips","slug":"224-emergencies-er-visits-making-the-call-coping-with-what-ifs-survival-tips","published_at":"2026-04-30T15:27:51+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619/224-emergencies-er-visits-making-the-call-coping-with-what-ifs-survival-tips","url":"https://podcasters.spotify.com/pod/show/the-rare-life/episodes/224-Emergencies--ER-Visits--Making-the-Call--Coping-with-What-Ifs--Survival-Tips-e3in1ms","duration_seconds":3953,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/the-rare-life-1239619/episodes/224-emergencies-er-visits-making-the-call-coping-with-what-ifs-survival-tips/transcription-requests","description":"Idempotently request low-priority transcript generation for this 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Advocacy","slug":"223-noelle-s-story-a-terminal-diagnosis-making-decisions-without-a-roadmap-longterm-advocacy","published_at":"2026-04-23T15:00:41+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619/223-noelle-s-story-a-terminal-diagnosis-making-decisions-without-a-roadmap-longterm-advocacy","url":"https://podcasters.spotify.com/pod/show/the-rare-life/episodes/223-Noelles-Story--A-Terminal-Diagnosis--Making-Decisions-Without-a-Roadmap---Longterm-Advocacy-e3ibtic","duration_seconds":2587,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/the-rare-life-1239619/episodes/223-noelle-s-story-a-terminal-diagnosis-making-decisions-without-a-roadmap-longterm-advocacy/transcription-requests","description":"Idempotently request low-priority transcript generation for this 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Alyssa","slug":"222-intellectual-disabilities-complicated-grief-stigma-and-shifting-perspectives-w-amanda-griffith-atkins-madeline-and-alyssa","published_at":"2026-04-16T17:25:30+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619/222-intellectual-disabilities-complicated-grief-stigma-and-shifting-perspectives-w-amanda-griffith-atkins-madeline-and-alyssa","url":"https://podcasters.spotify.com/pod/show/the-rare-life/episodes/222-Intellectual-Disabilities--Complicated-Grief--Stigma--and-Shifting-Perspectives-w-Amanda-Griffith-Atkins--Madeline-and-Alyssa-e3i0ot5","duration_seconds":3654,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/the-rare-life-1239619/episodes/222-intellectual-disabilities-complicated-grief-stigma-and-shifting-perspectives-w-amanda-griffith-atkins-madeline-and-alyssa/transcription-requests","description":"Idempotently request low-priority transcript generation 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Between","slug":"221-equipment-for-our-medically-complex-children-grief-gratitude-and-everything-in-between","published_at":"2026-04-09T15:41:05+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619/221-equipment-for-our-medically-complex-children-grief-gratitude-and-everything-in-between","url":"https://podcasters.spotify.com/pod/show/the-rare-life/episodes/221-Equipment-for-Our-Medically-Complex-Children--Grief--Gratitude--and-Everything-In-Between-e3hlnk9","duration_seconds":3144,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/the-rare-life-1239619/episodes/221-equipment-for-our-medically-complex-children-grief-gratitude-and-everything-in-between/transcription-requests","description":"Idempotently request low-priority transcript generation for this 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Fatherhood","slug":"220-robin-s-story-preparing-for-the-worst-staying-present-embracing-a-different-type-of-fatherhood","published_at":"2026-04-02T18:09:18+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619/220-robin-s-story-preparing-for-the-worst-staying-present-embracing-a-different-type-of-fatherhood","url":"https://podcasters.spotify.com/pod/show/the-rare-life/episodes/220-Robins-Story--Preparing-for-the-Worst--Staying-Present---Embracing-a-Different-Type-of-Fatherhood-e3hbdo0","duration_seconds":2408,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/the-rare-life-1239619/episodes/220-robin-s-story-preparing-for-the-worst-staying-present-embracing-a-different-type-of-fatherhood/transcription-requests","description":"Idempotently request low-priority transcript generation for this 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(UPDATED)","slug":"219-how-do-i-handle-questions-from-strangers-about-my-disabled-child-w-disabled-author-james-catchpole-updated","published_at":"2026-03-26T15:16:46+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619/219-how-do-i-handle-questions-from-strangers-about-my-disabled-child-w-disabled-author-james-catchpole-updated","url":"https://podcasters.spotify.com/pod/show/the-rare-life/episodes/219-How-Do-I-Handle-Questions-from-Strangers-About-My-Disabled-Child--w-Disabled-Author-James-Catchpole-UPDATED-e3h0lca","duration_seconds":3303,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/the-rare-life-1239619/episodes/219-how-do-i-handle-questions-from-strangers-about-my-disabled-child-w-disabled-author-james-catchpole-updated/transcription-requests","description":"Idempotently request low-priority transcript generation for this 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generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/the-rare-life-1239619/208-season-13-kickoff-a-new-theme-sneak-peeks.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]},{"title":"207: Season 12 Finale | Switching Hosts, Behind the Scenes + A Unanimous 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