{"podcast":{"title":"The Rare Life","slug":"the-rare-life-1239619","podcast_index_feed_id":1239619,"rss_url":"https://anchor.fm/s/22c0499c/podcast/rss","website_url":"https://therarelife.org","image_url":"https://d3t3ozftmdmh3i.cloudfront.net/staging/podcast_uploaded_nologo/5730271/7551fc611b293c10.jpeg","author":"Madeline Cheney","episode_count":305,"summary":"This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.","last_synced_at":"2026-07-10T02:17:02.683032+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619"},"episode":{"title":"Clinical Trials | Should I Enroll my Disabled Child in One? (Summer Mini #5)","slug":"clinical-trials-should-i-enroll-my-disabled-child-in-one-summer-mini-5","published_at":"2026-07-09T13:35:10+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619/clinical-trials-should-i-enroll-my-disabled-child-in-one-summer-mini-5","show_page_url":"https://stenobird.com/podcast/the-rare-life-1239619","url":"https://podcasters.spotify.com/pod/show/the-rare-life/episodes/Clinical-Trials--Should-I-Enroll-my-Disabled-Child-in-One--Summer-Mini-5-e3ls3ja","audio_url":"https://anchor.fm/s/22c0499c/podcast/play/122604586/https%3A%2F%2Fd3ctxlq1ktw2nl.cloudfront.net%2Fstaging%2F2026-6-9%2Fd420230a-f217-af5b-f1d9-c03cad05de4f.mp3","summary":"Clinical trials are so important. They’re how new therapies and treatments and cures are developed for diseases, and how we update our medical knowledge. At the same time, they aren’t without risk for our kids and our families. So, how do you decide whether it’s worth it? We’re breaking down that question with pros, cons, and personal experiences. A huge thank you to our sponsor for this summer season, Real Food Blends! Real Food Blends are the only 100% real food meals thatare ready-to-feed for people with feeding tubes. Offering 8 different meals and 1 snack for adults & kids, it's the closest thing to homemade blenderized tube feeding. Learn more at realfoodblends.com! Links: Fill out our contact form to join upcoming discussion groups! Join The Rare Life newsletter and never miss an update! Follow us on Instagram @the_rare_life ! Donate to the podcast or Contact me about sponsoring an episode.","meta_description":"Clinical trials are so important. They’re how new therapies and treatments and cures are developed for diseases, and how we update our medical knowledge.…","key_points":[],"chapters":[],"topics":[],"duration_seconds":1469,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/the-rare-life-1239619/episodes/clinical-trials-should-i-enroll-my-disabled-child-in-one-summer-mini-5/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/the-rare-life-1239619/clinical-trials-should-i-enroll-my-disabled-child-in-one-summer-mini-5.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}