{"podcast":{"title":"The Rare Life","slug":"the-rare-life-1239619","podcast_index_feed_id":1239619,"rss_url":"https://anchor.fm/s/22c0499c/podcast/rss","website_url":"https://therarelife.org","image_url":"https://d3t3ozftmdmh3i.cloudfront.net/staging/podcast_uploaded_nologo/5730271/7551fc611b293c10.jpeg","author":"Madeline Cheney","episode_count":305,"summary":"This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.","last_synced_at":"2026-07-10T02:17:02.683032+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619"},"episode":{"title":"208: Season 13 Kickoff | A New Theme + Sneak Peeks","slug":"208-season-13-kickoff-a-new-theme-sneak-peeks","published_at":"2026-01-09T16:02:00+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619/208-season-13-kickoff-a-new-theme-sneak-peeks","show_page_url":"https://stenobird.com/podcast/the-rare-life-1239619","url":"https://podcasters.spotify.com/pod/show/the-rare-life/episodes/208-Season-13-Kickoff--A-New-Theme--Sneak-Peeks-e3ddq7u","audio_url":"https://anchor.fm/s/22c0499c/podcast/play/113747646/https%3A%2F%2Fd3ctxlq1ktw2nl.cloudfront.net%2Fstaging%2F2026-0-9%2F43e768af-3f3b-ac23-4c9f-4c5ed7ad0929.mp3","summary":"Season 13 is here, and this time the focus is on our children’s disabilities themselves. This season, we’ll be talking about things like navigating surgeries and procedures, trachs and vents, behavioral diagnoses, schooling options, sexual health and safety, feeling judgment, and more. As always, there will be story episodes woven throughout the season, featuring parents sharing their experiences in their own words. We’re also sharing a few updates in this episode, including how hosting will look this season, details about our February Friends & Family Fundraiser during Rare Disease Month, and discussion groups, including the launch of our first international group. Finally, we’re wrapping up this season opener with clips from the first few episodes. Don't miss it! Links: Join The Rare Life newsletter andnever miss an update! Fill out our contact form to joinupcoming discussion groups! Follow us on Instagram @the_rare_life ! Donateto the podcast or Contactme about sponsoring an episode. Follow the Facebook page . Join the Facebook group Parents of Children with Rare Conditions . Access the transcript on the website here . And if you love this podcast, please leave usa rating or review in your favorite podcast app!","meta_description":"Season 13 is here, and this time the focus is on our children’s disabilities themselves. This season, we’ll be talking about things like navigating surger…","key_points":[],"chapters":[],"topics":[],"duration_seconds":977,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/the-rare-life-1239619/episodes/208-season-13-kickoff-a-new-theme-sneak-peeks/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/the-rare-life-1239619/208-season-13-kickoff-a-new-theme-sneak-peeks.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}