{"podcast":{"title":"The Rare Life","slug":"the-rare-life-1239619","podcast_index_feed_id":1239619,"rss_url":"https://anchor.fm/s/22c0499c/podcast/rss","website_url":"https://therarelife.org","image_url":"https://d3t3ozftmdmh3i.cloudfront.net/staging/podcast_uploaded_nologo/5730271/7551fc611b293c10.jpeg","author":"Madeline Cheney","episode_count":305,"summary":"This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.","last_synced_at":"2026-07-10T02:17:02.683032+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619"},"episode":{"title":"210: Receiving Judgement for Disability Parent Decisions w/ Madeline","slug":"210-receiving-judgement-for-disability-parent-decisions-w-madeline","published_at":"2026-01-22T16:05:16+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619/210-receiving-judgement-for-disability-parent-decisions-w-madeline","show_page_url":"https://stenobird.com/podcast/the-rare-life-1239619","url":"https://podcasters.spotify.com/pod/show/the-rare-life/episodes/210-Receiving-Judgement-for-Disability-Parent-Decisions-w-Madeline-e3e1iv3","audio_url":"https://anchor.fm/s/22c0499c/podcast/play/114395555/https%3A%2F%2Fd3ctxlq1ktw2nl.cloudfront.net%2Fstaging%2F2026-0-22%2F1923b370-f263-5b59-69ef-742ba98186bd.mp3","summary":"Living a medically complex life means making constant decisions under a microscope. About treatments. About schools. About rest. About what’s “enough.” And no matter what you choose, it often feels like someone is ready to tell you that you chose wrong. In this episode, Madeline and Alyssa talk about judgment: where it comes from, how it shows up, and why it cuts so deeply for parents of disabled and medically complex kids. From medical teams and family members to disability spaces and even other caregivers, judgment has a way of creeping into places we hoped would feel safe. This conversation also explores what it takes to rebuild trust in yourself after years of being second-guessed, and how many parents eventually reach a place of saying, “I am the expert here,” even when that comes with loss, boundary-setting, or strained relationships. If you’ve ever felt like no choice is the “right” one, or like you’re parenting under a microscope, this episode will resonate.","meta_description":"Living a medically complex life means making constant decisions under a microscope. About treatments. About schools. About rest. About what’s “enough.” An…","key_points":[],"chapters":[],"topics":[],"duration_seconds":4160,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/the-rare-life-1239619/episodes/210-receiving-judgement-for-disability-parent-decisions-w-madeline/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/the-rare-life-1239619/210-receiving-judgement-for-disability-parent-decisions-w-madeline.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}