{"podcast":{"title":"The Rare Life","slug":"the-rare-life-1239619","podcast_index_feed_id":1239619,"rss_url":"https://anchor.fm/s/22c0499c/podcast/rss","website_url":"https://therarelife.org","image_url":"https://d3t3ozftmdmh3i.cloudfront.net/staging/podcast_uploaded_nologo/5730271/7551fc611b293c10.jpeg","author":"Madeline Cheney","episode_count":305,"summary":"This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.","last_synced_at":"2026-07-10T02:17:02.683032+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619"},"episode":{"title":"227: Abuse and Neglect Safeguards | Who We Can Trust + How to Protect Our Disabled Children","slug":"227-abuse-and-neglect-safeguards-who-we-can-trust-how-to-protect-our-disabled-children","published_at":"2026-05-21T15:12:44+00:00","page_url":"https://stenobird.com/podcast/the-rare-life-1239619/227-abuse-and-neglect-safeguards-who-we-can-trust-how-to-protect-our-disabled-children","show_page_url":"https://stenobird.com/podcast/the-rare-life-1239619","url":"https://podcasters.spotify.com/pod/show/the-rare-life/episodes/227-Abuse-and-Neglect-Safeguards--Who-We-Can-Trust--How-to-Protect-Our-Disabled-Children-e3jn0c4","audio_url":"https://anchor.fm/s/22c0499c/podcast/play/120340292/https%3A%2F%2Fd3ctxlq1ktw2nl.cloudfront.net%2Fstaging%2F2026-4-21%2F3b76e5e8-96be-b46a-55e9-ebeeee80b0bb.mp3","summary":"Most of us can’t be with our children 24/7. At some point, we often must hand off care of our children school staff, nurses, therapists, hospitals, family members, etc to help care for our disabled and medically complex kids. And honestly? That can feel terrifying. In this episode, we're exploring one of the hardest topics parents in this community navigate: preventing abuse and neglect for children who may not be able to fully communicate what happened to them. We talk about the fears parents carry, missed medical care and hospital concerns, building trust with other caregivers, red flags families watch for, and the real-life strategies parents use to try to keep their children safe. If you’ve ever wondered how to balance protection with independence, trust your gut when something feels off, or navigate the reality that you can’t always be there, we hope this episode gives you a little guidance to get started. Links: Fill out our contact form to join upcoming discussion groups! Join The Rare Life newsletter and never miss an update! Follow us on Instagram @the_rare_life ! Donate to the podcast or Contact me about sponsoring an episode.","meta_description":"Most of us can’t be with our children 24/7. At some point, we often must hand off care of our children school staff, nurses, therapists, hospitals, family…","key_points":[],"chapters":[],"topics":[],"duration_seconds":2056,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/the-rare-life-1239619/episodes/227-abuse-and-neglect-safeguards-who-we-can-trust-how-to-protect-our-disabled-children/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/the-rare-life-1239619/227-abuse-and-neglect-safeguards-who-we-can-trust-how-to-protect-our-disabled-children.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}