Episode
Crystal Mollica
- Podcast
- Sarcoma Stories
- Published
- Jan 9, 2026
- Duration seconds
- 3443
- Processing state
not_requested- Canonical source
- https://rss.com/podcasts/sfasarcomastories/2450075
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Summary
We return from winter break and are joined by Crystal Mollica, a malignant peripheral nerve sheath tumor (MPNST) survivor. After receiving an initial misdiagnosis, Crystal trusted her instincts and advocated for a second opinion—one decision that ultimately led to an accurate MPNST diagnosis and life-saving care. That diagnosis resulted in a permanent colostomy, a urostomy, rectum removal, and a partial hysterectomy. Crystal talks about navigating this new normal, adjusting to a different lifestyle, and processing the emotional and physical experience of such major surgeries. She also shares how social media offered education and community during a time when she was searching Reddit and Instagram to learn how to live with a double ostomy. Now, Crystal pays it forward by sharing her own tips, tricks, and encouragement, reminding others that life as a double ostomate can absolutely be full, joyful, and meaningful. This conversation is a powerful reminder of the importance of self-advocacy, especially within rare cancer spaces like the sarcoma community. Thank you, Crystal, for your vulnerability, honesty, and commitment to helping others through your story. Links Subtype Page: https://curesarcoma.org/sarcoma-subtypes/malignant-peripheral-nerve-sheath-tumour/ Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/ Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/ Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704 Connect with Crystal: @ double.ostomy.gal