# Crystal Mollica

Page: https://stenobird.com/podcast/sarcoma-stories-7071726/crystal-mollica
Text version: https://stenobird.com/podcast/sarcoma-stories-7071726/crystal-mollica.md
Podcast: [Sarcoma Stories](https://stenobird.com/podcast/sarcoma-stories-7071726)
Published: 2026-01-09T14:08:14+00:00
Episode link: https://rss.com/podcasts/sfasarcomastories/2450075
Audio file: https://content.rss.com/episodes/295596/2450075/sfasarcomastories/2026_01_09_14_07_58_a696b32d-349c-4e5a-a9e4-804fca28737c.mp3
Processing state: not_requested
JSON: https://stenobird.com/v1/public/podcasts/sarcoma-stories-7071726/episodes/crystal-mollica
Duration seconds: 3443

## Resource

We return from winter break and are joined by Crystal Mollica, a malignant peripheral nerve sheath tumor (MPNST) survivor. After receiving an initial misdiagnosis, Crystal trusted her instincts and advocated for a second opinion—one decision that ultimately led to an accurate MPNST diagnosis and life-saving care. That diagnosis resulted in a permanent colostomy, a urostomy, rectum removal, and a partial hysterectomy. Crystal talks about navigating this new normal, adjusting to a different lifestyle, and processing the emotional and physical experience of such major surgeries. She also shares how social media offered education and community during a time when she was searching Reddit and Instagram to learn how to live with a double ostomy. Now, Crystal pays it forward by sharing her own tips, tricks, and encouragement, reminding others that life as a double ostomate can absolutely be full, joyful, and meaningful. This conversation is a powerful reminder of the importance of self-advocacy, especially within rare cancer spaces like the sarcoma community. Thank you, Crystal, for your vulnerability, honesty, and commitment to helping others through your story. Links Subtype Page: https://curesarcoma.org/sarcoma-subtypes/malignant-peripheral-nerve-sheath-tumour/ Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/ Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/ Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704 Connect with Crystal: @ double.ostomy.gal

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## Transcript

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