{"podcast":{"title":"Sarcoma Stories","slug":"sarcoma-stories-7071726","podcast_index_feed_id":7071726,"rss_url":"https://media.rss.com/sfasarcomastories/feed.xml","website_url":"https://curesarcoma.org/","image_url":"https://media.rss.com/sfasarcomastories/20241206_121251_97f318f2a25cbdb372cd74732febaf0a.png","author":"Sarcoma Foundation of America","episode_count":27,"summary":"We're excited to announce, \"Sarcoma Stories\" a new podcast from SFA. Sarcoma Stories is the only podcast highlighting the journey and experiences of people living and surviving sarcoma. Each episode will feature a guest sharing their sarcoma journey, resources they found valuable and more. Search Sarcoma Stories on your favorite podcast platform and be sure to follow to get updates on our latest episodes. We will also have a post episode discussion on our new facebook group. Join Now: https://www.facebook.com/groups/512452631597704","last_synced_at":"2026-06-04T04:20:59.478742+00:00","page_url":"https://stenobird.com/podcast/sarcoma-stories-7071726"},"episode":{"title":"Crystal Mollica","slug":"crystal-mollica","published_at":"2026-01-09T14:08:14+00:00","page_url":"https://stenobird.com/podcast/sarcoma-stories-7071726/crystal-mollica","show_page_url":"https://stenobird.com/podcast/sarcoma-stories-7071726","url":"https://rss.com/podcasts/sfasarcomastories/2450075","audio_url":"https://content.rss.com/episodes/295596/2450075/sfasarcomastories/2026_01_09_14_07_58_a696b32d-349c-4e5a-a9e4-804fca28737c.mp3","summary":"We return from winter break and are joined by Crystal Mollica, a malignant peripheral nerve sheath tumor (MPNST) survivor. After receiving an initial misdiagnosis, Crystal trusted her instincts and advocated for a second opinion—one decision that ultimately led to an accurate MPNST diagnosis and life-saving care. That diagnosis resulted in a permanent colostomy, a urostomy, rectum removal, and a partial hysterectomy. Crystal talks about navigating this new normal, adjusting to a different lifestyle, and processing the emotional and physical experience of such major surgeries. She also shares how social media offered education and community during a time when she was searching Reddit and Instagram to learn how to live with a double ostomy. Now, Crystal pays it forward by sharing her own tips, tricks, and encouragement, reminding others that life as a double ostomate can absolutely be full, joyful, and meaningful. This conversation is a powerful reminder of the importance of self-advocacy, especially within rare cancer spaces like the sarcoma community. Thank you, Crystal, for your vulnerability, honesty, and commitment to helping others through your story. Links Subtype Page: https://curesarcoma.org/sarcoma-subtypes/malignant-peripheral-nerve-sheath-tumour/ Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/ Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/ Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704 Connect with Crystal: @ double.ostomy.gal","meta_description":"We return from winter break and are joined by Crystal Mollica, a malignant peripheral nerve sheath tumor (MPNST) survivor. After receiving an initial misd…","key_points":[],"chapters":[],"topics":[],"duration_seconds":3443,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/sarcoma-stories-7071726/episodes/crystal-mollica/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/sarcoma-stories-7071726/crystal-mollica.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}