Episode
Rare Diseases - when medicine meets the uncommon
- Podcast
- Saving Lives In Slow Motion
- Published
- Apr 2, 2026
- Duration seconds
- 881
- Processing state
not_requested- Canonical source
- https://shows.acast.com/savinglivesinslowmotion/episodes/rare-diseases-when-medicine-meets-the-uncommon
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Summary
I thought in this episode I would acknowledge people living with rare diseases as they can be hard to diagnose and live with. Links: Batten Disease: https://my.clevelandclinic.org/health/diseases/6018-batten-disease Lorenzo's Oil: https://www.healthline.com/health/neurological-health/lorenzos-oil-does-it-work Moya Moya Syndrome: https://www.mayoclinic.org/diseases-conditions/moyamoya-disease/symptoms-causes/syc-20355586 CRISPR gene technology: https://www.broadinstitute.org/what-broad/areas-focus/project-spotlight/questions-and-answers-about-crispr Huntington’s Disease therapy: https://www.bbc.co.uk/news/articles/cevz13xkxpro Save your life in slow motion and those of others by subscribing now and sharing. Thank you for listening and for your support. It means a lot to me. Hosted on Acast. See acast.com/privacy for more information.