{"podcast":{"title":"Saving Lives In Slow Motion","slug":"saving-lives-in-slow-motion-4449011","podcast_index_feed_id":4449011,"rss_url":"https://feeds.acast.com/public/shows/60b20104ffcfab00117e6199","website_url":"https://shows.acast.com/savinglivesinslowmotion","image_url":"https://assets.pippa.io/shows/60b20104ffcfab00117e6199/1766237803975-84494e3b-87e7-4ff6-8c13-70d7456030e7.jpeg","author":"Dr Ayan Panja","episode_count":232,"summary":"Dr Ayan Panja puts health into context. A lifestyle medicine expert, author and family physician with over 25 years of experience, his unique blend of candour, perspective and knowledge make for a mind-expanding essential weekly bite-sized listen. Hosted on Acast. See acast.com/privacy for more information.","last_synced_at":"2026-07-31T04:17:31.622986+00:00","page_url":"https://stenobird.com/podcast/saving-lives-in-slow-motion-4449011"},"episode":{"title":"Rare Diseases -  when medicine meets the uncommon","slug":"rare-diseases-when-medicine-meets-the-uncommon","published_at":"2026-04-02T19:42:50+00:00","page_url":"https://stenobird.com/podcast/saving-lives-in-slow-motion-4449011/rare-diseases-when-medicine-meets-the-uncommon","show_page_url":"https://stenobird.com/podcast/saving-lives-in-slow-motion-4449011","url":"https://shows.acast.com/savinglivesinslowmotion/episodes/rare-diseases-when-medicine-meets-the-uncommon","audio_url":"https://sphinx.acast.com/p/open/s/60b20104ffcfab00117e6199/e/69ce643b1d7024f1a7b2e5c3/media.mp3","summary":"I thought in this episode I would acknowledge people living with rare diseases as they can be hard to diagnose and live with. Links: Batten Disease:&nbsp; https://my.clevelandclinic.org/health/diseases/6018-batten-disease Lorenzo's Oil: https://www.healthline.com/health/neurological-health/lorenzos-oil-does-it-work Moya Moya Syndrome:&nbsp; https://www.mayoclinic.org/diseases-conditions/moyamoya-disease/symptoms-causes/syc-20355586 CRISPR gene technology:&nbsp; https://www.broadinstitute.org/what-broad/areas-focus/project-spotlight/questions-and-answers-about-crispr Huntington’s Disease therapy:&nbsp; https://www.bbc.co.uk/news/articles/cevz13xkxpro Save your life in slow motion and those of others by subscribing now and sharing. Thank you for listening and for your support. It means a lot to me. Hosted on Acast. See acast.com/privacy for more information.","meta_description":"I thought in this episode I would acknowledge people living with rare diseases as they can be hard to diagnose and live with. Links: Batten Disease: …","key_points":[],"chapters":[],"topics":[],"duration_seconds":881,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/saving-lives-in-slow-motion-4449011/episodes/rare-diseases-when-medicine-meets-the-uncommon/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/saving-lives-in-slow-motion-4449011/rare-diseases-when-medicine-meets-the-uncommon.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}