Episode
Beyond the Build – A Rare Journey with Ines and James
- Podcast
- Product Pals
- Published
- Feb 4, 2026
- Duration seconds
- 4919
- Processing state
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Summary
In this heartfelt episode of Product Pals , Charlotte and Kiet sit down with design lead James Riddell and product leader Ines Goluza , the inspiring team behind Rare Journey — an AI-powered health companion app built to support families navigating rare diseases. After the birth of his son Felix and his diagnosis with the ultra-rare Myhre Syndrome, James, along with his partner Ivana and sister-in-law Ines, channelled their personal experience into building Rare Journey and co-founding the Myhre Syndrome Foundation Australia . What began as a family crisis quickly became a bold mission to support others through empathy-driven tech. 💡 What you’ll hear: Felix’s diagnosis and the origin of Rare Journey Why community knowledge is a superpower in healthcare Building under pressure: hospital rooms to MVP in 6 months Applying product and design thinking in the real world Reflections on scaling, funding, and staying mission-led To find out more about their stories visit: Myhre Syndrome Foundation Website: https://myhresyndromeaus.org/ Rare Journey: https://www.therarejourney.com/ Other Resources: Ronald McDonald House Foundation https://rmhc.org.au/