{"podcast":{"title":"Product Pals","slug":"product-pals-7068925","podcast_index_feed_id":7068925,"rss_url":"https://anchor.fm/s/f6dae0ac/podcast/rss","website_url":"https://linktr.ee/productpalspodcast","image_url":"https://d3t3ozftmdmh3i.cloudfront.net/staging/podcast_uploaded_nologo/41315395/41315395-1716842172947-f3f2aaf9b0124.jpg","author":"Charlotte Bian, Kiet Truong","episode_count":22,"summary":"Welcome to Product Pals. This is a space where product people come together to talk honestly about the work, the challenges, and everything in between. We share stories from our own journeys and from others in the product world. The moments that felt uncertain, the lessons that stuck, and the shifts that changed how we think and build. Product Pals is also a community. A place to feel supported, to learn from each other, and to remember that you are not navigating this alone. Whether you are experienced, just getting started, or somewhere in the middle, you are very welcome here. ☕️🍵🧋","last_synced_at":null,"page_url":"https://stenobird.com/podcast/product-pals-7068925"},"episode":{"title":"Beyond the Build – A Rare Journey with Ines and James","slug":"beyond-the-build-a-rare-journey-with-ines-and-james","published_at":"2026-02-04T20:00:00+00:00","page_url":"https://stenobird.com/podcast/product-pals-7068925/beyond-the-build-a-rare-journey-with-ines-and-james","show_page_url":"https://stenobird.com/podcast/product-pals-7068925","url":"https://podcasters.spotify.com/pod/show/productpals/episodes/Beyond-the-Build--A-Rare-Journey-with-Ines-and-James-e3ek17b","audio_url":"https://anchor.fm/s/f6dae0ac/podcast/play/114999979/https%3A%2F%2Fd3ctxlq1ktw2nl.cloudfront.net%2Fstaging%2F2026-1-4%2F417428714-44100-2-ee29b1d2293fc.mp3","summary":"In this heartfelt episode of Product Pals , Charlotte and Kiet sit down with design lead James Riddell and product leader Ines Goluza , the inspiring team behind Rare Journey — an AI-powered health companion app built to support families navigating rare diseases. After the birth of his son Felix and his diagnosis with the ultra-rare Myhre Syndrome, James, along with his partner Ivana and sister-in-law Ines, channelled their personal experience into building Rare Journey and co-founding the Myhre Syndrome Foundation Australia . What began as a family crisis quickly became a bold mission to support others through empathy-driven tech. 💡 What you’ll hear: Felix’s diagnosis and the origin of Rare Journey Why community knowledge is a superpower in healthcare Building under pressure: hospital rooms to MVP in 6 months Applying product and design thinking in the real world Reflections on scaling, funding, and staying mission-led To find out more about their stories visit: Myhre Syndrome Foundation Website: ⁠https://myhresyndromeaus.org/⁠ Rare Journey: ⁠ https://www.therarejourney.com/⁠ Other Resources: Ronald McDonald House Foundation https://rmhc.org.au/","meta_description":"In this heartfelt episode of Product Pals , Charlotte and Kiet sit down with design lead James Riddell and product leader Ines Goluza , the inspiring team…","key_points":[],"chapters":[],"topics":[],"duration_seconds":4919,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/product-pals-7068925/episodes/beyond-the-build-a-rare-journey-with-ines-and-james/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/product-pals-7068925/beyond-the-build-a-rare-journey-with-ines-and-james.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}