Episode
Dr. Marie-Claire Seeley on POTS, EDS & Changing the Future of Care
- Published
- Jun 30, 2026
- Duration seconds
- 3102
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Summary
Dr. Marie-Claire Seeley is a registered nurse, researcher, Founder and Volunteer CEO of the Australian POTS Foundation, and one of the leading voices advancing POTS research, education, and advocacy. In this episode of Let's Talk About the POTS Life , Kelsey sits down with Dr. Seeley to discuss her journey from developing POTS after a post-viral illness in 1993 to helping change the future of care for people living with POTS and dysautonomia around the world. Together, they discuss: Dr. Seeley's personal journey with POTS Why so many patients are dismissed or misdiagnosed The connection between POTS, Ehlers-Danlos syndrome (EDS), and hypermobility Why women with POTS often face unique challenges in healthcare Why we're experiencing an "epidemic of recognition," not an epidemic of POTS The future of POTS research, advocacy, and patient care Whether you're newly diagnosed or have been living with POTS for years, this conversation offers insight, validation, and hope from someone who understands the condition from every perspective as a patient, clinician, researcher, and advocate. Learn more about the Australian POTS Foundation: https://potsfoundation.org.au Connect with Us: Our Website Facebook: The POTS Life Instagram: @thepotslife_ Tik Tok: thepotslife