# Dr. Marie-Claire Seeley on POTS, EDS & Changing the Future of Care Page: https://stenobird.com/podcast/let-s-talk-about-the-pots-life-7083912/dr-marie-claire-seeley-on-pots-eds-changing-the-future-of-care Text version: https://stenobird.com/podcast/let-s-talk-about-the-pots-life-7083912/dr-marie-claire-seeley-on-pots-eds-changing-the-future-of-care.md Podcast: [Let's Talk About The POTS life](https://stenobird.com/podcast/let-s-talk-about-the-pots-life-7083912) Published: 2026-06-30T13:52:49+00:00 Episode link: https://podcasters.spotify.com/pod/show/the-pots-life/episodes/Dr--Marie-Claire-Seeley-on-POTS--EDS--Changing-the-Future-of-Care-e3lfkup Audio file: https://anchor.fm/s/fc68c494/podcast/play/122196377/https%3A%2F%2Fd3ctxlq1ktw2nl.cloudfront.net%2Fstaging%2F2026-5-30%2F427100168-44100-2-208ae16a9a56.m4a Processing state: not_requested JSON: https://stenobird.com/v1/public/podcasts/let-s-talk-about-the-pots-life-7083912/episodes/dr-marie-claire-seeley-on-pots-eds-changing-the-future-of-care Duration seconds: 3102 ## Resource Dr. Marie-Claire Seeley is a registered nurse, researcher, Founder and Volunteer CEO of the Australian POTS Foundation, and one of the leading voices advancing POTS research, education, and advocacy. In this episode of Let's Talk About the POTS Life , Kelsey sits down with Dr. Seeley to discuss her journey from developing POTS after a post-viral illness in 1993 to helping change the future of care for people living with POTS and dysautonomia around the world. Together, they discuss: Dr. Seeley's personal journey with POTS Why so many patients are dismissed or misdiagnosed The connection between POTS, Ehlers-Danlos syndrome (EDS), and hypermobility Why women with POTS often face unique challenges in healthcare Why we're experiencing an "epidemic of recognition," not an epidemic of POTS The future of POTS research, advocacy, and patient care Whether you're newly diagnosed or have been living with POTS for years, this conversation offers insight, validation, and hope from someone who understands the condition from every perspective as a patient, clinician, researcher, and advocate. Learn more about the Australian POTS Foundation: https://potsfoundation.org.au Connect with Us: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Our Website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Facebook: The POTS Life Instagram: @thepotslife_ Tik Tok: thepotslife ## Actions - request_transcript: `POST https://stenobird.com/v1/public/podcasts/let-s-talk-about-the-pots-life-7083912/episodes/dr-marie-claire-seeley-on-pots-eds-changing-the-future-of-care/transcription-requests` — Idempotently request low-priority transcript generation for this episode. - read_markdown: `GET https://stenobird.com/podcast/let-s-talk-about-the-pots-life-7083912/dr-marie-claire-seeley-on-pots-eds-changing-the-future-of-care.md` — Read the agent-friendly Markdown representation of this episode resource. A page view does not enqueue transcription. Agents should invoke `request_transcript` explicitly when they need this episode processed. ## Transcript Full transcripts are not published on public pages unless there is a clear rights basis.