Episode
Jesy Fights for SMA Screening Access | Sheffield News
- Published
- Jul 11, 2026
- Duration seconds
- 116
- Processing state
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- https://sources.thednn.ai/4fe7cfa2e5c37f2b
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Summary
Jesy Nelson’s heart-wrenching yet defiant journey as a mother to twin daughters diagnosed with spinal muscular atrophy continues to ignite national conversation. Facing the daily realities of heatwaves, spinal jackets, and limited mobility, Jesy remains a fierce advocate for newborn SMA screening — a lifeline she believes could prevent future families from enduring the same pain. Despite overwhelming public support and a small but powerful milestone — one daughter sitting up unaided — Jesy is outraged by the patchwork rollout of screening, leaving 72% of the UK without access. Her voice, fueled by love and rage, demands equity: no child should have to fight for survival based on postcode. Listen in comfort: Get a discount on a Soli Pillow: http://solipillow.com/discount/dnn. Advertise on DNN: [email protected] This is an automated, high-level news summary based on public reporting. Report issues to [email protected]. View sources & latest updates: https://sources.thednn.ai/4fe7cfa2e5c37f2b