Episode
Episode 351: The Fear Went Away - Jackson's Mom
- Published
- Jun 4, 2026
- Duration seconds
- 4841
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Summary
Becky has spent her entire life adapting to a world that was not built for her. As a woman with dwarfism who stands four feet tall, she has learned to problem solve, improvise, and push forward in spaces that were never designed with her in mind. She has built the confidence and strength to ignore the stares and the laughs. She has figured out children's recliners and gaming chairs and car beds and oxygen tanks and every other logistical puzzle that life has thrown at her. And then she lost Jackson. And something unexpected happened. The fear went away. Jackson Robert was born on August 9th, 2021, a perfect baby who arrived after 39 weeks, a NICU stay, 20 days of sleep studies, a car bed, oxygen for sleeping, and a yellow sheet of paper with 20 specialist appointments waiting on the other side of discharge day. He also had dwarfism, just like his mama, and Becky will tell you that getting that news was the best news she had ever received. He was her boy. He was going to be like her. He was six months and twenty-one days old when he died, following a catastrophic loss of oxygen during a routine sleep study at the hospital. He had not been breathing for thirty minutes before anyone noticed. The code team took four minutes to arrive. Becky was thrown out of the room. His father came back from the hotel not even having had enough time to remove his shoes. Twelve days in the ICU followed. Twelve days of fighting to understand what had happened while simultaneously fighting to give Jackson the best possible care. Twelve days of MRIs and heart rate changes and a physical therapist who came once, lifted his leg, watched it fall, and never came back. Twelve days of Becky going to the hotel every night to sleep, so she could be fully present for him every morning. And at 8:09 PM…