Episode
Season 2 | Episode 8: Lesley and Louise: No Shame! Putting an End to the Secrecy of CAH
- Podcast
- CAH PULSE
- Published
- Jun 25, 2025
- Duration seconds
- 2292
- Processing state
not_requested
Actions
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Summary
In this gripping episode Dina and Stephanie tackle a most important and controversial topic, putting an end to the dangerous stigma which far too many children (both boys and girls), parents and adults living with CAH encounter, causing adverse effects on their lives. This episode is a crusade to make a difference to the lives of so many who live in darkness and risk thanks to the dangerous and unnecessary shame that often exists with CAH. Joining Dina and Stephanie are CARES Foundation Pioneer Award winner Lesley Holroyd and Associate Dean of Nursing at UVA, and mom to Joey, Louise Flemming who share their expertise regarding shame and secrecy attached to this life threatening condition. How can we "normalize" CAH? How can we ensure the medical professionals in every hospital are educated about CAH so as to end the spread of judgement before it begins? Do YOU keep your CAH, or your child's CAH, a secret? Dina wants to hear from you! Hear their stories, share their tears and be inspired. See what can be achieved when 4 brilliant, driven women with strength, knowledge and first hand experience put their heads together to help better this amazing community.