Episode
Season 2 | Episode 7: "Go Live Your Life as Normally as Possible" But...Nothing About CAH is Normal
- Podcast
- CAH PULSE
- Published
- Apr 17, 2025
- Duration seconds
- 2096
- Processing state
not_requested
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Summary
In the mid 1960's, Tim was diagnosed with CAH just weeks after he was born. His CAH simply didn’t set off many alarms with his medical team, nor his parents. As a result, he seemed to breeze through time with little challenges and even went 50 years without a single adrenal crisis! However, Tim had learned some difficult news at the age of 30, thanks to the long term effects of prescribed prednisone, when a bone scan showed that he had severe osteoporosis. At 30 years old, Tim had the bone density of a woman in her 80’s. He was finally feeling the effects of CAH. Up to that point his doctors told him to just "go live your life as normally as possible" but nothing is "normal" about CAH. Join Stephanie and Dina as they speak to Tim, a dad to identical twin daughters and a champion of Cares Foundation, about his sudden change in medication, the physical challenges he experienced as a result, as well as an uncharacteristic and overwhelming feeling of sadness. Tim’s roller coaster journey gives us the main facets and challenges of CAH but will leave you with much hope for the future.