Episode
Medicaid and Marketplaces Changing Landscape for Bleeding Disorders Community with Johanna Gray
- Podcast
- Beyond the Bleeds
- Published
- Sep 15, 2025
- Duration seconds
- 2099
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Summary
Today on Beyond the Bleeds, John and I delve into the “One Big Beautiful Bill,” a landmark legislation signed into law on July 4, 2025, and its far-reaching impact on individuals and families living with bleeding disorders. We break down what this trillion-dollar healthcare bill really means—from increased costs and new eligibility rules to the practical next steps for protecting our access to care. An extraordinary advocate and expert joins us to help navigate the changes ahead. Johanna Gray is a Principal at Artemis Policy Group, a health policy and association management firm in Washington, DC. She works with clients, including patient advocacy groups and associations of specialized treatment centers, to develop and implement successful advocacy strategies involving Congress and federal public health agencies. She has served as a federal policy advisor to the National Bleeding Disorders Foundation since 2007 and the Hemophilia Alliance since 2011. Johanna began her career as an intern for then-Senator Barack Obama and has held several positions in policy analysis and government affairs before founding Artemis with her partners, Ellen Riker and Elizabeth Karan, in 2020. She received an MPA from the Maxwell School at Syracuse University and a B.A. in Public Policy Studies with honors from the University of Chicago. Outside of work, she reads extensively to stay current with two book clubs and enjoys traveling, trying new restaurants, and exploring DC with her husband, Dave, and rescue pup, Frank. “I also think our advocacy with partners made H R1 less bad than it could have been…we have moved mountains before, and we will have to again.” ~Joanna Gray Today on Beyond the Bleeds: The “One Big Beautiful Bill” (HR1) implements approximately $…