Episode
Can Austin Lead the Race to Solving Rare Diseases with the Founders of the Firefly Fund
- Podcast
- Austin Next
- Published
- Oct 2, 2024
- Duration seconds
- 2341
- Processing state
failed- Canonical source
- https://share.transistor.fm/s/0fd7d594
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Summary
Nothing motivates a parent to action like a sick child, and for the Andrews family, words like no and impossible became mere roadblocks on their journey to help their kids. Our guests, Pam and Chris Andrews, founders of the Firefly Fund, turned their battle with their daughters' rare genetic disorder into a mission to revolutionize rare disease research and treatment here in Austin and beyond. Episode Highlights Firefly Fund's Origin Establishing a Rare Disease Center at UT Dell Medical School Navigating the Diagnostic Odyssey Interplay of Tech Innovation and New Business Models in Healthcare Downstream Effects of Rare Disease Advancements What's Next, Austin? Pam Andrews: "Let's see how the intersection of technology and healthcare really can transform healthcare because I think that rare disease can light the way and inform the way that we do precision medicine for generations to come. So that's what we want through the Center for Rare Disease here in Austin is for it to evolve and unfold in a partnership with the rare disease community." Chris Andrews: "My dream is that when people think of Austin, they'll think of the University of Texas, they'll think of barbecue, but they also will think of a place where people work to save lives." Firefly Fund: Website , Facebook , X/Twitter , Instagram , LinkedIn ------------------- Austin Next Links: Website , X/Twitter , YouTube , LinkedIn Ecosystem Metacognition Substack