{"podcast":{"title":"This is Parkinson's","slug":"this-is-parkinson-s-7724134","podcast_index_feed_id":7724134,"rss_url":"https://feeds.megaphone.fm/thisisparkinsons","website_url":"https://thisisparkinsons.org","image_url":"https://megaphone.imgix.net/podcasts/8edf04f2-124f-11f1-929d-cf51699e9ec2/image/029ceb1d399cdfe9b22525a0097af6c0.jpg?ixlib=rails-4.3.1&max-w=3000&max-h=3000&fit=crop&auto=format,compress","author":"This is Parkinson's","episode_count":12,"summary":"In 2014, journalist Lisa Volenec was diagnosed with Parkinson’s disease. She stayed silent for years - until now. This is Parkinson's is her wayof breaking the silence and giving a voice to a community of more than 10 million people worldwide living with this incurable condition. Drawing on her years as a reporter, Lisa leads thoughtful, revealing conversations with people living with Parkinson’s, caregivers, and experts, because no two Parkinson’s journeys are the same. With episodes grounded in honesty, humor, and heart, this podcast is Lisa’s mission: to challenge stigma, build empathy, and create a place where people living with Parkinson’s feel seen, heard, and less alone. This half-hour + video/audio podcast will be available on Wednesdays on Apple Podcasts, Spotify, and YouTube. 🩵 Thank you for watching or listening! We appreciate your support. ꕤ For more information: thisisparkinsons.org ꕤ To help and donate: https://bit.ly/thisisparkinsonsdonate","last_synced_at":"2026-06-18T04:18:34.548293+00:00","page_url":"https://stenobird.com/podcast/this-is-parkinson-s-7724134"},"episode":{"title":"Ep. 7  A Caregivers Guide","slug":"ep-7-a-caregivers-guide","published_at":"2026-04-22T15:09:00+00:00","page_url":"https://stenobird.com/podcast/this-is-parkinson-s-7724134/ep-7-a-caregivers-guide","show_page_url":"https://stenobird.com/podcast/this-is-parkinson-s-7724134","url":"https://traffic.megaphone.fm/CTCPO8757211390.mp3","audio_url":"https://traffic.megaphone.fm/CTCPO8757211390.mp3","summary":"How do you manage a complex neurodegenerative disease from 2,000 miles away? In this episode of This is Parkinson's, Lisa Volenec sits down with Angie Allison, a daughter and advocate who turned her father Ron’s 15-year battle with Parkinson’s into a masterclass in caregiving. Angie pulls back the curtain on the \"Parkinson’s Iceberg,\" discussing the non-motor symptoms that are often more challenging than the physical tremors—including apathy, depression, and hallucinations. Whether you are a care partner, a family member, or a patient, Angie’s \"meet them in the moment\" philosophy offers a beautiful, practical approach to maintaining dignity and quality of life. Key Takeaways: The \"Unified Force\": How to split responsibilities among siblings. Portal Advocacy: Why being the \"squeaky wheel\" with medical teams saves lives. The Emotional Shift: Learning to not take the \"disease talking\" personally. Environmental Factors: A look at why the Midwest is considered a \"cluster\" for PD. ━━━━━━ ꕤ Support the mission of This is Parkinson’s Donate here: https://bit.ly/thisisparkinsonsdonate ━━━━━━ ꕤ Follow us: Instagram: https://www.instagram.com/thisisparkinsonsofficial Facebook: https://www.facebook.com/thisisparkinsons ━━━━━━ ꕤ About This is Parkinson’s: This is Parkinson’s is a nonprofit storytelling platform dedicated to sharing honest conversations about life with Parkinson’s disease. Through interviews with patients, caregivers, advocates, and experts, TIP aims to educate, reduce stigma, and build a community around the realities of living with Parkinson’s. Learn more: https://www.thisisparkinsons.org Contact: info@thisisparkinsons.org ━━━━━━ ꕤ 🔔 🩵 ⟢ Thank you for watching and supporting TIP. Your support helps amplify the voices of the Parkinson’s community and brings greater…","meta_description":"How do you manage a complex neurodegenerative disease from 2,000 miles away? In this episode of This is Parkinson's, Lisa Volenec sits down with Angie All…","key_points":[],"chapters":[],"topics":[],"duration_seconds":1955,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/this-is-parkinson-s-7724134/episodes/ep-7-a-caregivers-guide/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/this-is-parkinson-s-7724134/ep-7-a-caregivers-guide.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}