{"podcast":{"title":"The Art Of Imperfect Adulting","slug":"the-art-of-imperfect-adulting-7153506","podcast_index_feed_id":7153506,"rss_url":"https://feeds.captivate.fm/imperfect-adulting/","website_url":"https://www.imperfectadulting.com","image_url":"https://artwork.captivate.fm/2ac49018-887e-4eb1-9bd8-589eaf1c41f5/waJd6ibigV5LfOqjGM5CmQOc.jpg","author":"Amy Stone","episode_count":239,"summary":"The Art of Imperfect Adulting is a podcast and streaming YouTube show for anyone who has ever looked at their own face peering back at them from a Zoom screen and thought: how did I get here, and what do I want to do next? This show is for you if life has taken a turn you didn't plan for and you're still working out what it means. Maybe it's a divorce that rewrote the story you thought you were living, or a health struggle including chronic illness, weight changes, or menopause that shifted everything. It could be a rapid unplanned professional shift like getting fired, laid off, or finally admitting that the corporate grind isn't compatible with the life you actually want. Perhaps your insomnia comes from worrying that you chose the wrong degree, didn't get the job, or that the path you were so sure about went somewhere you didn't intend. Or maybe you feel a sense of drowning in a caregiving season that is quietly consuming you like quicksand, whether you're showing up for a parent, a child, a spouse, or a sibling. It could be a sneaky adulting decision that feels like it should be easier, like choosing a school or curriculum for your kids that is keeping you up at night. Perhaps…","last_synced_at":"2026-07-29T02:20:45.418703+00:00","page_url":"https://stenobird.com/podcast/the-art-of-imperfect-adulting-7153506"},"episode":{"title":"Lived Experience Facing Genetic Diagnosis with Mindy Uhrlaub","slug":"lived-experience-facing-genetic-diagnosis-with-mindy-uhrlaub","published_at":"2026-06-04T13:00:00+00:00","page_url":"https://stenobird.com/podcast/the-art-of-imperfect-adulting-7153506/lived-experience-facing-genetic-diagnosis-with-mindy-uhrlaub","show_page_url":"https://stenobird.com/podcast/the-art-of-imperfect-adulting-7153506","url":"https://www.imperfectadulting.com","audio_url":"https://op3.dev/e/dts.podtrac.com/redirect.mp3/episodes.captivate.fm/episode/90f848a7-cee1-424b-adea-8ff85e77718c.mp3","summary":"If you love the show and you'd like to support it directly you can tip the host here https://imperfect-adulting.captivate.fm/support In this episode of The Art of Imperfect Adulting, Amy Stone speaks with Mindy Uhrlaub about living with the shadow of ALS (Amyotrophic Lateral Sclerosis), also known as Lou Gehrig’s Disease. Based in Marin County, California, Mindy shares her family legacy of ALS, navigating life as a genetic carrier, and the complexities of caregiving for multiple family members while raising children. This deeply personal conversation explores not just illness and loss, but resilience, advocacy, and the evolution from creative professional to patient rights activist. Listeners will learn about genetic ALS, the realities of the Sandwich Generation, and how storytelling shapes healing and community. About Mindy Uhrlaub: Mindy Uhrlaub is a carrier of the fatal C9orf7 genetic mutation. She participates in twenty longitudinal studies of ALS and has testified before the FDA and the NIH about medical rights of genetic carriers. Mindy was nominated onto a committee at the National Academy of Science to write the 2024 report, Living with ALS. Her latest book, Last Nerve: A Memoir of Illness and the Endurance of Family, won the 2025 Nonfiction Book Award. For her ALS advocacy, Uhrlaub also received awards from the Les Turner ALS Foundation, ALS TDI, and the ALS Network. Main Topics Covered: The reality of growing up in a family with ALS: genetic risk, diagnosis, and evolving medical understanding. Mindy’s experience as both a caregiver for her husband (twice diagnosed with lymphoma) and her mother (diagnosed with ALS). What it means to be part of the Sandwich Generation—balancing care for children and aging parents, and why it’s different today than for previous…","meta_description":"If you love the show and you'd like to support it directly you can tip the host here https://imperfect-adulting.captivate.fm/support In this episode of Th…","key_points":[],"chapters":[],"topics":[],"duration_seconds":2641,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/the-art-of-imperfect-adulting-7153506/episodes/lived-experience-facing-genetic-diagnosis-with-mindy-uhrlaub/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/the-art-of-imperfect-adulting-7153506/lived-experience-facing-genetic-diagnosis-with-mindy-uhrlaub.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}