{"podcast":{"title":"Substantial Matters: Life & Science of Parkinson's","slug":"substantial-matters-life-science-of-parkinson-s-7073791","podcast_index_feed_id":7073791,"rss_url":"https://feeds.libsyn.com/97678/rss","website_url":"http://parkinson.org/podcast","image_url":"https://static.libsyn.com/p/assets/a/3/4/f/a34fc440597df736a04421dee9605cbd/substantial-matters-final.jpg","author":"Danielle Agpalo","episode_count":100,"summary":"How can people with Parkinson's live a better life today? Join the Parkinson's Foundation as we highlight the treatments and techniques that can help all people affected by Parkinson's live a better life today, as well as the research that can bring a better tomorrow. View more information on our episodes by visiting parkinson.org/Podcast. Share your comments and thoughts at parkinson.org/Feedback.","last_synced_at":"2026-07-28T22:21:17.241526+00:00","page_url":"https://stenobird.com/podcast/substantial-matters-life-science-of-parkinson-s-7073791"},"episode":{"title":"Raising Awareness About Parkinson's Through Advocacy","slug":"raising-awareness-about-parkinson-s-through-advocacy","published_at":"2026-04-14T11:00:00+00:00","page_url":"https://stenobird.com/podcast/substantial-matters-life-science-of-parkinson-s-7073791/raising-awareness-about-parkinson-s-through-advocacy","show_page_url":"https://stenobird.com/podcast/substantial-matters-life-science-of-parkinson-s-7073791","url":"https://www.parkinson.org/resources-support/online-education/podcast","audio_url":"https://traffic.libsyn.com/secure/parkinson/190_-_Friestedt__Chason_-_Awareness_Through_Advocacy_v4au.mp3?dest-id=506623","summary":"There are countless ways to get involved in raising awareness about Parkinson's disease (PD)- whether it's striking a conversation with someone at the grocery store, signing a petition, or meeting with your local members of congress. At its core, policy change begins with meaningful conversations. The more we openly talk about PD, the more we build understanding, urgency, and momentum to shape the future of Parkinson's care and treatment. The Parkinson's Foundation recently launched the Advocacy Center as a resource to support anyone looking to get more involved in advocacy. Through this platform, people can receive the latest policy news and find opportunities to engage their legislators to help make an impact in the Parkinson's space. In this episode, we speak with Ken Chason, a Parkinson's Foundation Ambassador, US Veteran, and person with Parkinson's, alongside Andi Lipstein Fristedt, the Executive Vice President and Chief Strategy and Policy Officer at the Parkinson's Foundation. Drawing on their experiences in public service, they highlight the many ways to get involved in advocacy, and why this time is especially critical for accelerating change in the Parkinson's policy realm . Follow and rate us on your favorite podcast platform to be notified when there's a new episode! Let us know what other topics you would like us to cover by visiting parkinson.org/feedback .","meta_description":"There are countless ways to get involved in raising awareness about Parkinson's disease (PD)- whether it's striking a conversation with someone at the gro…","key_points":[],"chapters":[],"topics":[],"duration_seconds":1607,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/substantial-matters-life-science-of-parkinson-s-7073791/episodes/raising-awareness-about-parkinson-s-through-advocacy/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/substantial-matters-life-science-of-parkinson-s-7073791/raising-awareness-about-parkinson-s-through-advocacy.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}