{"podcast":{"title":"Speak Up For Your Health","slug":"speak-up-for-your-health-6687973","podcast_index_feed_id":6687973,"rss_url":"https://feeds.megaphone.fm/speak-up-for-your-health","website_url":"https://www.archellemd.com/","image_url":"https://megaphone.imgix.net/podcasts/b08e4992-d632-11ee-886a-8b8b9b599294/image/1edbb6e12b66297e92331873ada263a8.jpg?ixlib=rails-4.3.1&max-w=3000&max-h=3000&fit=crop&auto=format,compress","author":"Archelle Georgiou, MD","episode_count":65,"summary":"Advocating for your health is important, but it’s not easy. In Speak Up For Your Health, Dr. Archelle Georgiou talks with patients about how they overcame feeling intimidated by today’s complex medical system and used their voice to finally get the care they needed. These personal stories along with Archelle’s practical tips will empower you to have a balanced (non-paternalistic) relationship with your healthcare provider.","last_synced_at":"2026-07-21T02:17:57.988784+00:00","page_url":"https://stenobird.com/podcast/speak-up-for-your-health-6687973"},"episode":{"title":"Mystery Diagnosis: 20 Years of Not Being Believed","slug":"mystery-diagnosis-20-years-of-not-being-believed","published_at":"2026-02-24T12:00:00+00:00","page_url":"https://stenobird.com/podcast/speak-up-for-your-health-6687973/mystery-diagnosis-20-years-of-not-being-believed","show_page_url":"https://stenobird.com/podcast/speak-up-for-your-health-6687973","url":"https://www.podtrac.com/pts/redirect.mp3/traffic.megaphone.fm/DHT1214375224.mp3","audio_url":"https://www.podtrac.com/pts/redirect.mp3/traffic.megaphone.fm/DHT1214375224.mp3","summary":"What happens when it takes 20 years to get the right diagnosis — and along the way, doctors (and even your family) don’t always believe you? In this episode, we explore Eva Minkoff’s delayed diagnosis, the reality of invisible illness, and the emotional toll of not being seen in the healthcare system. Eva shares her journey to being diagnosed with Ehlers-Danlos syndrome, a connective tissue disorder that causes chronic joint pain, dislocations, and fatigue. Her symptoms began when she was a young ballet dancer. But for nearly two decades, she lived in diagnostic limbo — receiving partial answers, normal test results, and, at times, skepticism from both clinicians and family members. The lessons from this episode go beyond one rare condition: Answers matter — even when they’re not good news. If you feel dismissed, it’s okay to keep looking. Being believed can be as powerful as being diagnosed. Live by your own owner’s manual — and teach your children to do the same. How to follow Eva Minkoff: Instagram: @Life_Of_Eves LinkedIn: linkedin.com/in/evalana Website: https://boldbeing.co/ Connect with Archelle Subscribe to the ⁠ArcHealth newsletter⁠ Follow ⁠Archelle's Substack","meta_description":"What happens when it takes 20 years to get the right diagnosis — and along the way, doctors (and even your family) don’t always believe you? In this episo…","key_points":[],"chapters":[],"topics":[],"duration_seconds":1999,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/speak-up-for-your-health-6687973/episodes/mystery-diagnosis-20-years-of-not-being-believed/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/speak-up-for-your-health-6687973/mystery-diagnosis-20-years-of-not-being-believed.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}