{"podcast":{"title":"Say More","slug":"say-more-6418113","podcast_index_feed_id":6418113,"rss_url":"https://feeds.megaphone.fm/TPG4149271018","website_url":"https://art19.com/shows/say-more","image_url":"https://megaphone.imgix.net/podcasts/bae4de04-10e4-11f0-bd10-c32d7595fd60/image/6266b3c40a6d3b295936c156494aca4f.jpeg?ixlib=rails-4.3.1&max-w=3000&max-h=3000&fit=crop&auto=format,compress","author":"Jim Dao","episode_count":170,"summary":"Big ideas and big debates, explained through intimate conversations with the compelling personalities who shape them. AI and biotech. Higher education and health care. Climate and sustainability. Politics and the media. Culture and culture wars. Hosted by Boston Globe columnist Shirley Leung.","last_synced_at":"2026-07-30T16:18:37.021410+00:00","page_url":"https://stenobird.com/podcast/say-more-6418113"},"episode":{"title":"BONUS Say More LIVE: Rare Diseases aren’t so Rare.","slug":"bonus-say-more-live-rare-diseases-aren-t-so-rare","published_at":"2026-02-27T08:00:00+00:00","page_url":"https://stenobird.com/podcast/say-more-6418113/bonus-say-more-live-rare-diseases-aren-t-so-rare","show_page_url":"https://stenobird.com/podcast/say-more-6418113","url":"https://pdst.fm/e/mgln.ai/e/51/tracking.swap.fm/track/tcQd6Q6C0RUUlOHq1Ytj/pscrb.fm/rss/p/traffic.megaphone.fm/TPG9071045128.mp3?updated=1772162455","audio_url":"https://pdst.fm/e/mgln.ai/e/51/tracking.swap.fm/track/tcQd6Q6C0RUUlOHq1Ytj/pscrb.fm/rss/p/traffic.megaphone.fm/TPG9071045128.mp3?updated=1772162455","summary":"It’s Rare Disease Week! And the Boston Globe held its second annual Rare Disease Summit, shining a spotlight on the 30 million people living with a rare disease in the US. In this BONUS live recording of Say More, we talk to Boston Children’s Hospital head of pediatrics Dr. Wendy Chung about strides in newborn genetic screening, and Bob and Bobby Coughlin, a father and son whose lives have been transformed by a breakthrough cystic fibrosis drug that’s changing the outlook for people with the disease. Email us at saymore@globe.com. To sign up for the Boston Globe Events newsletter, click here.","meta_description":"It’s Rare Disease Week! And the Boston Globe held its second annual Rare Disease Summit, shining a spotlight on the 30 million people living with a rare d…","key_points":[],"chapters":[],"topics":[],"duration_seconds":2870,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/say-more-6418113/episodes/bonus-say-more-live-rare-diseases-aren-t-so-rare/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/say-more-6418113/bonus-say-more-live-rare-diseases-aren-t-so-rare.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}