{"podcast":{"title":"Sarcoma Stories","slug":"sarcoma-stories-7071726","podcast_index_feed_id":7071726,"rss_url":"https://media.rss.com/sfasarcomastories/feed.xml","website_url":"https://curesarcoma.org/","image_url":"https://media.rss.com/sfasarcomastories/20241206_121251_97f318f2a25cbdb372cd74732febaf0a.png","author":"Sarcoma Foundation of America","episode_count":27,"summary":"We're excited to announce, \"Sarcoma Stories\" a new podcast from SFA. Sarcoma Stories is the only podcast highlighting the journey and experiences of people living and surviving sarcoma. Each episode will feature a guest sharing their sarcoma journey, resources they found valuable and more. Search Sarcoma Stories on your favorite podcast platform and be sure to follow to get updates on our latest episodes. We will also have a post episode discussion on our new facebook group. Join Now: https://www.facebook.com/groups/512452631597704","last_synced_at":"2026-06-04T04:20:59.478742+00:00","page_url":"https://stenobird.com/podcast/sarcoma-stories-7071726"},"episode":{"title":"Chris Barry","slug":"chris-barry","published_at":"2025-10-29T15:03:14+00:00","page_url":"https://stenobird.com/podcast/sarcoma-stories-7071726/chris-barry","show_page_url":"https://stenobird.com/podcast/sarcoma-stories-7071726","url":"https://rss.com/podcasts/sfasarcomastories/2297130","audio_url":"https://content.rss.com/episodes/295596/2297130/sfasarcomastories/2025_10_29_13_19_27_9d7c85ed-8803-4531-a0ae-f3aac06e61fc.mp3","summary":"On this episode, we sit down with Chris Barry, a rare disease patient and desmoid tumor survivor, dad, and civil engineer living in the San Francisco Bay Area. Diagnosed with familial adenomatous polyposis (FAP) as a teenager and later with a large desmoid tumor, Chris has faced immense medical challenges — including chemotherapy, major surgeries, and an intestinal transplant — yet continues to turn adversity into advocacy. Through this conversation and his personal reflections, this episode shines a light on the realities of living with a desmoid tumor and FAP, a diagnosis often described as “benign,” or “not that severe” - a phrase that can be deeply misunderstood. Join Chris as he shines a light on what “benign” can actually mean for a desmoid tumor patient, where his journey took him, and how he became involved in the sarcoma community to help advocates for others who find themselves in a similar position. Links: Subtype Page Sarcoma Patient Pathways Survey Discussion Guide Sarcoma Stories FB Group Connect with Chris: E-mail: cbarry04@gmail.com Instagram @barry.dude","meta_description":"On this episode, we sit down with Chris Barry, a rare disease patient and desmoid tumor survivor, dad, and civil engineer living in the San Francisco Bay…","key_points":[],"chapters":[],"topics":[],"duration_seconds":3072,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/sarcoma-stories-7071726/episodes/chris-barry/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/sarcoma-stories-7071726/chris-barry.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}