{"podcast":{"title":"Raise the Line","slug":"raise-the-line-29872","podcast_index_feed_id":29872,"rss_url":"https://feeds.simplecast.com/9vxwebuv","website_url":"https://www.osmosis.org/podcast","image_url":"https://image.simplecastcdn.com/images/3b7fa6ee-c1b0-4948-a67d-4af81edb0745/c0309fc8-9a85-466b-bcd6-6c976632b9cb/3000x3000/screenshot_2026_04_15_at_70710pm.jpg?aid=rss_feed","author":"Osmosis from Elsevier","episode_count":588,"summary":"Join host Lindsey Smith and other Elsevier team members for a global conversation about improving health and healthcare with prominent figures in education and healthcare innovation as well as senior leaders at organizations such as the CDC, National Institutes of Health, Johns Hopkins University, WHO, Harvard University, NYU Langone and many others.","last_synced_at":"2026-07-17T04:19:55.574443+00:00","page_url":"https://stenobird.com/podcast/raise-the-line-29872"},"episode":{"title":"A Personal Struggle Fuels National Advocacy for Rare Disease Patients: Shanti Hegde, Board Member of Hemophilia Federation of America","slug":"a-personal-struggle-fuels-national-advocacy-for-rare-disease-patients-shanti-hegde-board-member-of-hemophilia-federation-of-america","published_at":"2026-02-26T17:00:00+00:00","page_url":"https://stenobird.com/podcast/raise-the-line-29872/a-personal-struggle-fuels-national-advocacy-for-rare-disease-patients-shanti-hegde-board-member-of-hemophilia-federation-of-america","show_page_url":"https://stenobird.com/podcast/raise-the-line-29872","url":"https://www.osmosis.org/podcast","audio_url":"https://cdn.simplecast.com/media/audio/transcoded/4dabe4aa-b059-4b71-b1b0-bc0467d6937b/76aac233-4587-4ece-89ba-76c24522a3de/episodes/audio/group/38cedbb3-1f02-451a-b387-947228cafdb9/group-item/6f8c6adc-a52e-4dcf-8ba0-0bacef7a6823/128_default_tc.mp3?aid=rss_feed&feed=9vxwebuv","summary":"We’re marking Rare Disease Month 2026 by highlighting the powerful story of Shanthi Hegde, a young patient advocate whose efforts to transform how bleeding disorders are understood, treated, and supported is fueled by her personal struggle with these conditions. Join host Lindsey Smith for a remarkable Year of the Zebra conversation that connects patient voice to system change, and explores what real equity for rare disease communities will require.","meta_description":"We’re marking Rare Disease Month 2026 by highlighting the powerful story of Shanthi Hegde, a young patient advocate whose efforts to transform how bleedin…","key_points":[],"chapters":[],"topics":[],"duration_seconds":2719,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/raise-the-line-29872/episodes/a-personal-struggle-fuels-national-advocacy-for-rare-disease-patients-shanti-hegde-board-member-of-hemophilia-federation-of-america/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/raise-the-line-29872/a-personal-struggle-fuels-national-advocacy-for-rare-disease-patients-shanti-hegde-board-member-of-hemophilia-federation-of-america.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}