{"podcast":{"title":"PeDRA Pearls","slug":"pedra-pearls-1565679","podcast_index_feed_id":1565679,"rss_url":"https://feeds.captivate.fm/pedra-podcasts/","website_url":"https://pedra-podcasts.captivate.fm","image_url":"https://artwork.captivate.fm/d03e59e2-be47-4185-a593-a3d2689541e6/zbogO40Ga8pDgevZ0jFBaRaG.png","author":"Pediatric Dermatology Research Alliance","episode_count":200,"summary":"The Pediatric Dermatology Research Alliance (PeDRA) is vibrant research network pursuing the mission to create, inspire, and sustain research to prevent, treat, and cure childhood skin disease.","last_synced_at":"2026-07-28T02:18:56.127488+00:00","page_url":"https://stenobird.com/podcast/pedra-pearls-1565679"},"episode":{"title":"Heroes for Hallie Grace: Turning Grief into Action","slug":"heroes-for-hallie-grace-turning-grief-into-action","published_at":"2026-05-11T16:30:00+00:00","page_url":"https://stenobird.com/podcast/pedra-pearls-1565679/heroes-for-hallie-grace-turning-grief-into-action","show_page_url":"https://stenobird.com/podcast/pedra-pearls-1565679","url":"https://pedra-podcasts.captivate.fm","audio_url":"https://episodes.captivate.fm/episode/e534544c-a415-42a7-88b9-49bc12bc6162.mp3","summary":"In this episode, host Jenn Dawson speaks with Anne Davis, Pys.D., clinical psychologist, grief and trauma specialist, and mother of Hallie Grace Davis, who lived with junctional epidermolysis bullosa (EB). Anne shares Hallie’s story and how her family created Heroes for Hallie Grace to support EB families through memorial and welcome bundles, practical assistance via the Wings of Care Initiative, community events like the Butterfly Ball, and research funding. This conversation offers a clear message for researchers and clinicians alike: center quality of life, listen to patients' and caregivers' experiences, and work together to accelerate progress. Please click here to learn more about Heroes for Hallie Grace.","meta_description":"In this episode, host Jenn Dawson speaks with Anne Davis, Pys.D., clinical psychologist, grief and trauma specialist, and mother of Hallie Grace Davis, wh…","key_points":[],"chapters":[],"topics":[],"duration_seconds":2587,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/pedra-pearls-1565679/episodes/heroes-for-hallie-grace-turning-grief-into-action/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/pedra-pearls-1565679/heroes-for-hallie-grace-turning-grief-into-action.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}