{"podcast":{"title":"On Rare","slug":"on-rare-5037493","podcast_index_feed_id":5037493,"rss_url":"https://feed.podbean.com/onrarebridgebio/feed.xml","website_url":"https://onrarebridgebio.podbean.com","image_url":"https://pbcdn1.podbean.com/imglogo/image-logo/13721480/ON_RARE_-_Cover_small_8a6rl.png","author":"BridgeBio Pharma","episode_count":48,"summary":"Join us each month to listen and learn from the experts – people living with rare conditions. We’ll discuss the challenges and triumphs of life with a rare genetic condition and hear from scientists working to develop new medicines. Honest conversations with the rare community, led by the patient advocacy team at BridgeBio. Subscribe below to catch each episode as it goes live.","last_synced_at":"2026-06-04T06:18:31.087005+00:00","page_url":"https://stenobird.com/podcast/on-rare-5037493"},"episode":{"title":"On Rare Innovators: Nasha Fitter is Redefining the Rare Disease Playbook – “Who says we can’t do this?”","slug":"on-rare-innovators-nasha-fitter-is-redefining-the-rare-disease-playbook-who-says-we-can-t-do-this","published_at":"2025-12-10T19:20:10+00:00","page_url":"https://stenobird.com/podcast/on-rare-5037493/on-rare-innovators-nasha-fitter-is-redefining-the-rare-disease-playbook-who-says-we-can-t-do-this","show_page_url":"https://stenobird.com/podcast/on-rare-5037493","url":"https://onrarebridgebio.podbean.com/e/on-rare-innovators-nasha-fitter-is-redefining-the-rare-disease-playbook-%e2%80%93-who-says-we-can-t-do-this/","audio_url":"https://mcdn.podbean.com/mf/web/vj9ueaxn9v5g289y/On_Rare_Innovators_-_Nasha_final_56mmfu.mp3","summary":"In this episode of On Rare Innovators, Mandy Rohrig, Senior Director of Patient Advocacy at BridgeBio, and David Rintell, Head of Patient Advocacy at BridgeBio, talk with Nasha Fitter, a parent, entrepreneur, and rare disease leader whose determination was reshaped the day her daughter Amara was diagnosed with FOXG1 syndrome. Drawing on a career defined by bold pivots and purpose-driven problem solving, Nasha is challenging long-held assumptions about what small, rare disease communities can achieve. From building the FOXG1 Research Foundation to co-founding Citizen Health, she has pushed for new models of data, drug development, and patient empowerment. Nasha’s story is a reminder that innovation often begins with a single question: “Who says we can’t do this?”","meta_description":"In this episode of On Rare Innovators, Mandy Rohrig, Senior Director of Patient Advocacy at BridgeBio, and David Rintell, Head of Patient Advocacy at Brid…","key_points":[],"chapters":[],"topics":[],"duration_seconds":2621,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/on-rare-5037493/episodes/on-rare-innovators-nasha-fitter-is-redefining-the-rare-disease-playbook-who-says-we-can-t-do-this/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/on-rare-5037493/on-rare-innovators-nasha-fitter-is-redefining-the-rare-disease-playbook-who-says-we-can-t-do-this.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}