{"podcast":{"title":"Make Visible: ME/CFS, Long Covid, POTS, EDS, Fibro & MCAS Explored","slug":"make-visible-chronic-illness-explored-7015207","podcast_index_feed_id":7015207,"rss_url":"https://feed.podbean.com/madevisible/feed.xml","website_url":"https://madevisible.podbean.com","image_url":"https://pbcdn1.podbean.com/imglogo/image-logo/19258195/MakeVisible_artwork2000_nwhgpv.jpeg","author":"Visible with Emily Kate Stephens","episode_count":40,"summary":"Shining a light on complex chronic illness. Journalist Emily Kate Stephens discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, EDS, Fibromyalgia, POTS, and more, we delve into living with energy-limiting, invisible illness.","last_synced_at":"2026-07-25T06:20:50.842452+00:00","page_url":"https://stenobird.com/podcast/make-visible-chronic-illness-explored-7015207"},"episode":{"title":"#24 Ehlers Danlos Syndrome & Orthostatic Intolerance in Chronic Fatigue conditions with Dr Peter Rowe","slug":"24-ehlers-danlos-syndrome-orthostatic-intolerance-in-chronic-fatigue-conditions-with-dr-peter-rowe","published_at":"2025-10-31T18:12:51+00:00","page_url":"https://stenobird.com/podcast/make-visible-chronic-illness-explored-7015207/24-ehlers-danlos-syndrome-orthostatic-intolerance-in-chronic-fatigue-conditions-with-dr-peter-rowe","show_page_url":"https://stenobird.com/podcast/make-visible-chronic-illness-explored-7015207","url":"https://madevisible.podbean.com/e/24-ehlers-danlos-syndrome-orthostatic-intolerance-in-chronic-fatigue-conditions-with-dr-peter-rowe/","audio_url":"https://mcdn.podbean.com/mf/web/akug8hn2p8zh4i6t/Visible_S1_Ep24_Peter_Rowe.mp3","summary":"Dr Peter Rowe is a leading voice for adolescents and young people with Ehlers Danlos Syndrome (EDS) and Fatigue-related conditions. An expert in orthostatic intolerance (OI), which is prevalent in nearly 100% of his patients, he believes that these conditions are treatable and he can move patients from bed-bound to regaining a decent quality of life using existing techniques. He is director of the chronic fatigue clinic at Johns Hopkins Children’s Center where he diagnoses and helps young people with ME/CFS, EDS, Long Covid and related disorders. Dr Rowe was the first to identify the cross-over of EDS, OI and ME/CFS in 1998 - and his pioneering work has led many first documentations and a prolific amount of research in the field ever-since. Referred to as a pioneering puzzle-solver, Dr Rowe brings the knowledge that he has developed over the past 30 years to tireless, continued research and daily treatment of young patients. In this week’s episode, recorded in-person at John Hopkins School of Medicine, he tells us “history is key”. At each appointment, he talks through the history of his patient’s symptoms with them and their families, and applies his historic knowledge to treating them with tried and tested techniques. He breaks down their conditions into it component parts, and treats each with approved drugs and lifestyle strategies, changing the lives of individuals and their families. His work looking at the overlap of these conditions is vast. He strives to treat, educate and share his knowledge from his decades of experience. From the point at which he identified the relationship between EDS, OI and ME/CFS the work he produces today identifying the overlaps and opportunities to arise from comparing ME/CFS and Long Covid, Dr Rowe continues to strive to break down…","meta_description":"Dr Peter Rowe is a leading voice for adolescents and young people with Ehlers Danlos Syndrome (EDS) and Fatigue-related conditions. An expert in orthostat…","key_points":[],"chapters":[],"topics":[],"duration_seconds":2745,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/make-visible-chronic-illness-explored-7015207/episodes/24-ehlers-danlos-syndrome-orthostatic-intolerance-in-chronic-fatigue-conditions-with-dr-peter-rowe/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/make-visible-chronic-illness-explored-7015207/24-ehlers-danlos-syndrome-orthostatic-intolerance-in-chronic-fatigue-conditions-with-dr-peter-rowe.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}