{"podcast":{"title":"Clinical Research Coach","slug":"clinical-research-coach-5690243","podcast_index_feed_id":5690243,"rss_url":"https://anchor.fm/s/af13ef84/podcast/rss","website_url":"https://clinicalresearchcoach.com","image_url":"https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/29273193/29273193-1666319127359-95931c56d9916.jpg","author":"Leanne Woehlke","episode_count":46,"summary":"The Clinical Research Coach Podcast bridges conversations between industry, thought leaders and patients. We have vulnerable and real conversations with the goal of impacting the industry in meaningful ways.","last_synced_at":"2026-09-18T12:18:57.086835+00:00","page_url":"https://stenobird.com/podcast/clinical-research-coach-5690243"},"episode":{"title":"Ella Balasa- Cystic Fibrosis Patient Advocate","slug":"ella-balasa-cystic-fibrosis-patient-advocate","published_at":"2026-02-15T23:23:59+00:00","page_url":"https://stenobird.com/podcast/clinical-research-coach-5690243/ella-balasa-cystic-fibrosis-patient-advocate","show_page_url":"https://stenobird.com/podcast/clinical-research-coach-5690243","url":"https://podcasters.spotify.com/pod/show/clinresearchcoach/episodes/Ella-Balasa--Cystic-Fibrosis-Patient-Advocate-e3f4v83","audio_url":"https://anchor.fm/s/af13ef84/podcast/play/115555011/https%3A%2F%2Fd3ctxlq1ktw2nl.cloudfront.net%2Fstaging%2F2026-1-15%2Fec18e06d-ea13-658c-416c-09c7997591e0.mp3","summary":"In this episode of the Clinical Research Coach, I sit down with Ella Balasa, a cystic fibrosis patient advocate whose lived experience is shaping how our industry understands trust, transparency, and meaningful patient engagement. Diagnosed in infancy with cystic fibrosis, a progressive genetic lung disease, Ella has spent her life navigating hospital systems, breakthrough therapies, and clinical trials — not as an abstract participant, but as someone whose health and future depend on research progress. Along the way, she has become a powerful voice for improving how industry partners with patients. In this conversation, Ella shares what sponsors, sites, and biotech leaders often overlook: * Patient experience is never one-size-fits-all — even within the same diagnosis. * Patients learn about trials through trusted networks, not just databases or digital ads. * Transparency builds confidence and drives long-term participation in research. * Dropout affects more than timelines — it influences trust and future enrollment decisions. * Technology should support patients, but never replace human connection. Ella’s perspective challenges us to think beyond enrollment metrics and toward something deeper: relational trust. Because sustainable progress in clinical research depends on listening to patients as individuals, partners, and experts in their own lives. To learn more about Ella: Https:/ellabalasa.com","meta_description":"In this episode of the Clinical Research Coach, I sit down with Ella Balasa, a cystic fibrosis patient advocate whose lived experience is shaping how our…","key_points":[],"chapters":[],"topics":[],"duration_seconds":2881,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/clinical-research-coach-5690243/episodes/ella-balasa-cystic-fibrosis-patient-advocate/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/clinical-research-coach-5690243/ella-balasa-cystic-fibrosis-patient-advocate.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}