{"podcast":{"title":"Beyond the Bleeds","slug":"beyond-the-bleeds-7074228","podcast_index_feed_id":7074228,"rss_url":"https://hemophiliaoutreach.org/feed/podcast/","website_url":"https://hemophiliaoutreach.org/","image_url":"https://hemophiliaoutreach.org/wp-content/uploads/2025/04/Album-Art.jpg","author":"Hemophilia Outreach Center","episode_count":50,"summary":"Beyond the Bleeds is your go-to podcast for navigating life with bleeding disorders like hemophilia, von Willebrand disease, and more. Each episode brings expert insights, inspiring personal stories, and practical advice for managing these conditions. Whether you’re living with a bleeding disorder or supporting someone who is, this podcast offers support, education, and a sense of community. Join us as we explore the challenges, triumphs, and innovations in care. For more resources, visit hemophiliaoutreach.org.","last_synced_at":"2026-07-20T10:20:06.864084+00:00","page_url":"https://stenobird.com/podcast/beyond-the-bleeds-7074228"},"episode":{"title":"Real Family Perspectives on Treating Bleeding Disorders with Inhibitors with Andrea Buxton & Kristy Schiffer Part II","slug":"real-family-perspectives-on-treating-bleeding-disorders-with-inhibitors-with-andrea-buxton-kristy-schiffer-part-ii","published_at":"2025-12-22T05:00:00+00:00","page_url":"https://stenobird.com/podcast/beyond-the-bleeds-7074228/real-family-perspectives-on-treating-bleeding-disorders-with-inhibitors-with-andrea-buxton-kristy-schiffer-part-ii","show_page_url":"https://stenobird.com/podcast/beyond-the-bleeds-7074228","url":"https://hemophiliaoutreach.org/real-family-perspectives-on-treating-bleeding-disorders-with-inhibitors-with-andrea-buxton-kristy-schiffer-part-ii/","audio_url":"https://media.blubrry.com/3770961/content.blubrry.com/3770961/035_Real_Family_Perspectives_on_Treating_Bleeding_Disorders_with_Inhibitors_with_Andrea_Buxton_Kristy_Schiffer_Part_II_Final.mp3","summary":"Today on Beyond the Bleeds, we’re again joined by Andrea Buxton and Kristy Schiffer for part two of this heartfelt exploration of family life with a child facing an inhibitor diagnosis. Together, we dive deep into the emotional and practical realities of daily infusions, coping with medical routines, and the unwavering strength required to navigate uncertainty—especially when medical needs so impact childhood and parenting. From the chaos of nightly infusions to developing nursing skills on the fly, we open up about growing as parents, partners, and caregivers, and the importance of leaning on support systems when life feels completely out of control. Kristy Schiffer is a devoted mother and passionate advocate for her family. With her vivid storytelling and honesty, she illuminates the challenges and triumphs of raising her son William, who requires regular infusions due to an inhibitor. Andrea Buxton serves as the nurse practitioner and clinical director at the Hemophilia Outreach Center (HOC). With her depth of experience treating inherited bleeding disorders, Andrea is known for combining her clinical expertise with an ability to translate complex medical topics into practical advice for families. Her advocacy and leadership have improved protocols and advanced support for patients confronting inhibitors and the evolving treatments in hemophilia care. “As a parent, you want to think your kid trusts you 100% no matter what … but that’s just not how their brains work.” ~Kristy Schiffer Today on Beyond the Bleeds: Building a nightly routine for infusions is a significant adjustment, often requiring both parents to work together and improvise under pressure. Children adapt remarkably to medical routines, sometimes not remembering life any other way—but for parents…","meta_description":"Today on Beyond the Bleeds, we’re again joined by Andrea Buxton and Kristy Schiffer for part two of this heartfelt exploration of family life with a…","key_points":[],"chapters":[],"topics":[],"duration_seconds":995,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/beyond-the-bleeds-7074228/episodes/real-family-perspectives-on-treating-bleeding-disorders-with-inhibitors-with-andrea-buxton-kristy-schiffer-part-ii/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/beyond-the-bleeds-7074228/real-family-perspectives-on-treating-bleeding-disorders-with-inhibitors-with-andrea-buxton-kristy-schiffer-part-ii.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}