{"podcast":{"title":"Beyond the Bleeds","slug":"beyond-the-bleeds-7074228","podcast_index_feed_id":7074228,"rss_url":"https://hemophiliaoutreach.org/feed/podcast/","website_url":"https://hemophiliaoutreach.org/","image_url":"https://hemophiliaoutreach.org/wp-content/uploads/2025/04/Album-Art.jpg","author":"Hemophilia Outreach Center","episode_count":50,"summary":"Beyond the Bleeds is your go-to podcast for navigating life with bleeding disorders like hemophilia, von Willebrand disease, and more. Each episode brings expert insights, inspiring personal stories, and practical advice for managing these conditions. Whether you’re living with a bleeding disorder or supporting someone who is, this podcast offers support, education, and a sense of community. Join us as we explore the challenges, triumphs, and innovations in care. For more resources, visit hemophiliaoutreach.org.","last_synced_at":"2026-07-20T10:20:06.864084+00:00","page_url":"https://stenobird.com/podcast/beyond-the-bleeds-7074228"},"episode":{"title":"Living Life Beyond Hemophilia B: A Personal Journey with Chris Woller","slug":"living-life-beyond-hemophilia-b-a-personal-journey-with-chris-woller","published_at":"2026-07-06T05:00:00+00:00","page_url":"https://stenobird.com/podcast/beyond-the-bleeds-7074228/living-life-beyond-hemophilia-b-a-personal-journey-with-chris-woller","show_page_url":"https://stenobird.com/podcast/beyond-the-bleeds-7074228","url":"https://hemophiliaoutreach.org/living-life-beyond-hemophilia-b/","audio_url":"https://media.blubrry.com/3770961/content.blubrry.com/3770961/Chris_Woller_His_Story_of_Hemophilia_B_Audio_v2.mp3","summary":"Today on Beyond the Bleeds , Heather and John are joined by HOC’s IT Coordinator, Chris Woller, for a personal conversation about growing up with severe hemophilia B and how treatment has changed over the course of his lifetime. Chris shares his experiences navigating childhood with a bleeding disorder, the challenges of early treatment, and how advances in care have allowed him to live a full and active life. The conversation begins with Chris’s childhood, when treatment options were limited and spontaneous bleeds often meant long plasma infusions, wheelchairs, and missing out on activities many other children took for granted. He reflects on the emotional impact of growing up with hemophilia, finding confidence through music, and learning to navigate friendships while living with a chronic condition. Chris also shares the story of a life-threatening brain bleed that changed his perspective and ultimately strengthened his connection to the Hemophilia Outreach Center. He discusses how receiving care through a Hemophilia Treatment Center helped guide his treatment and why comprehensive care continues to play such an important role for people living with bleeding disorders. Finally, the group reflects on how dramatically hemophilia treatment has evolved. From fresh frozen plasma and on-demand treatment to prophylaxis and today’s extended half-life therapies, Chris offers a unique perspective as someone who has experienced these advancements firsthand. He closes with encouragement for parents and young people living with bleeding disorders, reminding listeners that while hemophilia is part of who you are, it doesn’t have to define your future. “Your bleeding disorder is a part of who you are… but it doesn’t have to determine who you are.” — C…","meta_description":"Today on Beyond the Bleeds , Heather and John are joined by HOC’s IT Coordinator, Chris Woller, for a personal conversation about growing up with se…","key_points":[],"chapters":[],"topics":[],"duration_seconds":1765,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/beyond-the-bleeds-7074228/episodes/living-life-beyond-hemophilia-b-a-personal-journey-with-chris-woller/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/beyond-the-bleeds-7074228/living-life-beyond-hemophilia-b-a-personal-journey-with-chris-woller.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}